Archived Events
Events will be moved to this folder when they are archived.
London Virgin Marathon 2012
Lee is running the London Virgin Marathon 2012 for SOFT UK and Combat Stress. The course is a gruelling 26 miles 385 yards long, passing through the streets of London from Blackheath to the famous finish line at The Mall.
Fundraising in memory of baby Imogen 3.5.11 - 8.5.11
Rebecca Ellis did a Sky Dive on 31.10.11
Julie Wright ran in an event on 11.9.11
Gemma Day ran in an event on 11.9.11
Hannah Smith and Friends walked...
The rainbow coloured beard
Grant Fraser I've been growing my beard since my daughter Aimee's service day on the 23rd of July 2010 ....
Sky Dive in Memory of Leon 2.3.11-12.9.11
God saw you getting tired, when a cure was not to be. So he wrapped his arms around you, and whispered, “come to me.”
Leon 2.3.11-12.9.11
White water rafting on the River Tummel
In memory of Marlene's baby Logan who was diagnosed with trisomy 18,.......
Bike ride and other events
Hi, for the 3rd year I am cycling in memory of Simon for SOFT UK. I will be on my bike, hopefully, for no longer than 7 hours....but it may be more! read about Emma and other events....
Mount Kilimanjaro Climb
In memory of Clive's sister Beth 23.06.88 - 24.9.88,who had trisomy 13,......
Liverpool 10K
Phillip McEnvoy ran the Liverpool 10K for SOFT UK and raised £140.00.
Northern Ireland Fundraiser
'After Cathal’s amazing fight for life we decided we wanted to raise money for the charities that had supported us.
BUPA Great North Run
Gillian ran the 2010 BUPA Great North Run on 19.9.10.
Nominate them before 3rd May for the 'Who cares award' for the chance to win them a break.
InsuranceWith, supported by Genetic Alliance UK, have launched the Who Cares Award to give carers the opportunity to be recognised for all of their hard work. The awards will be based on nominations from the public or through dedicated charities of those people who support others, dedicate their lives or put their lives on hold to care for others. Candidates can be young or old, a professional nurse or a relative. You can nominate someone you know here.
SOFT UK Northern Ireland Family Day 2013
The Northern Ireland Family Day will take place on Saturday 10th August at the Charelmount Arms Hotel in Armagh.
Join other SOFT UK families to chat, share experiences and bring the children along for the fun activities! There will also be some remembrance time for those families who wish to remember a loved one.
As always everyone is very welcome!
Refreshments will be provided.
For more information and booking, please contact enquiries@soft.org.uk
Siblings Research Project
Joanne Fullerton, a Trainee Clinical Psychologist with Bangor University is completing a study investigating the experiences of siblings of children with life limiting conditions. She is looking for volunteers to take part. The aim of the study is to better understand the experiences of this group of siblings. If you are the parent of a sibling aged between 3 and 16 years, and you and your sibling child wish to take part, simply email her on j.fullerton@bangor.ac.uk or contact her via telephone on 07957 620608
SOFT US Website Launch
Our colleagues at SOFT USA have just launched their new website. It has a fantastic new look at contains lots of resources for families and also professionals. There is a comprehensive research section, providing all the details of the latest research on Trisomies and related issues. There are some beautiful family stories and videos and links to all their support materials. The site also has a foreign language translation function for those who first language is not english.
SOFT US have worked in partnership with us for many years and have kindly given us permission to feature their content on our own site, making sure that all families have access to the information that they need.
So head on over and have a look at www.trisomy.org
CEN report on Emotional Impact of Tube Feeding in Scotland
The CEN have published their results on their work improving support for families in Scotland of children who are tube fed. The full report is available here. http://www.cen.scot.nhs.uk/files/Emotional_Impact_Evaluation_Jan13.pdf
