Home > Get Involved > Fundraise > Community & Workplace Events > Past events > Fundraising in Memory of Toby Robert Smith

Fundraising in Memory of Toby Robert Smith


I am running the Edinburgh Marathon in Memory of my son Toby Robert Smith, who passed away in 2006.

Toby had Trisomy 13 and was with us for 83 hours 54 mins.....

We knew that Toby had a cleft lip and a heart defect, but at no point was Trisomy 13 mentioned. We were aware that Toby would need to have some operations, but we weren't prepared for what followed after his birth. The 83 hours we had with Toby and his sister, Amelia, will live with us forever. We are so very proud of Toby and he is very much part of our family.

Its so important that families receive support before, during and after the birth of a child with Trisomy 13. SOFT UK can provide this support and I am proud to be running for SOFT UK.

On May 27th 2012 I am running my first marathon in Memory of Toby. The marathon is in Edinburgh and will be an amazing and emotional day. Please support me and SOFT UK by sponsoring me at http://uk.virginmoneygiving.com/4toby

Thank you, Robert Smith

  • Currently 0 out of 5 Stars.
  • 1
  • 2
  • 3
  • 4
  • 5
Rating: 0/5 (0 votes cast)

Thank you for rating!

You have already rated this page, you can only rate it once!

Your rating has been changed, thanks for rating!

Log in or create a user account to rate this page.