Home > Get Involved > Fundraise > Community & Workplace Events > Past events > Fundraising in memory of baby Imogen 3.5.11 - 8.5.11

Fundraising in memory of baby Imogen 3.5.11 - 8.5.11

Rebecca Ellis did a Sky Dive on 31.10.11
Julie Wright ran in an event on 11.9.11
Gemma Day ran in an event on 11.9.11
Hannah Smith and Friends walked...

Hadrians Wall in memory of Imogen Walking with Imogen is a charity event set up by Hannah Smith, Emma Latham, Lucy Aitchison, Sam Farish, Carl Taylor & Alex Watson in recognition of Imogen Shouler. Presently there is not enough financial aid for research or support for individuals and families. We are hoping to raise awareness and funds for two charities, Sands (Stillbirth & neonatal death charity) and SOFT UK (support organisation for trisomy 13/18 and related disorders) by organising and taking part in an 84 mile group walk along Hadrains Wall starting 31st July 2011.

Running the Robin Hood Marathon

Screen shot 2011-08-25 at 19.02.28

My name is Julie, I am the lady with dark hair in the newspaper photograph and I want to tell you about baby Imogen. When we heard that close friends Isabel and Rick were expecting their second child everyone was so happy for them. Then on a routine scan it was seen that something was not quite right; the baby was a girl but it was suspected she had Patau's Syndrome. This is a type of chromosomal abnormality which greatly impedes the quality of life a person will have and results in severe physical and mental disabilities.

Screen shot 2011-08-25 at 19.02.28_2

Consequently Isabel was sent for further tests and a few days before Christmas 2010, their worst fear was confirmed. As parents they were given an extremely difficult choice to make. Isabel chose to carry on with the pregnancy and consequently Imogen was named.

She is due to be born late April and no matter what, she will be born into a family that have already grown to love her very much. Please revisit my page as I will keep you updated on how Imogen is doing.

The charity that support babies and their families affected by this syndrome is SOFT UK. It is a small UK based charity set up to help those affected, and their families, by Trisomy 13 (Patau's Syndrome) and Trisomy 18 (Edwards' Syndrome).

I urge you to take some time to read some other families stories on the SOFTuk website. I defy any of you to read them without a tear being shed or a heartstring being pulled. So what am I going to do to try and raise some money?? The Robin Hood half marathon!!

It’s been 16 years since my last half marathon and after throwing my trainers in the bin after crossing the finishing line then never even thought about running again. At 47 I thought I was well past doing anything like that; but having “met” Imogen through her scan pictures, and read the stories decided that there was no option but to pull on my trainers and try and raise some money for SOFTuk.

PROGRESS UPDATE IMOGEN SHOULER WAS BORN ON 3RD MAY 2011.

A message from Isobel and Rick - 3rd May
"Baby Imogen was born Tues 3rd May @ 8.24am weighing 5lb 3oz. She has shown a lot of fighting spirit and courage however it's anticipated her time with us will be very short. We are praying her time on earth is as peaceful as possible xxx"

Progress Update 4th May
Imogen update: sadly we've now moved to childrens hospice for care until she passes. Christening on Sunday is cancelled. Thanks for all your kind words of support xxx

Progress Update 5th May
Imogen update: a much better day :o) finally proved she can wee so allowed milk again after 24 hours without fluid. Met her big brother and had her picture taken by professional photographer

Progress Update 6th May
Imogen has had her breakfast and gone back to sleep. Another day over another night of praying for a miracle. Please God let her be with us in the morning xxx

Progress Update 7th May
Thank you for all your prayers. She survived the night. Xxx

Progress Update 8th May
Imogen Rosemary Isabel Shouler is now at peace playing with the angels. 3.5.11-8.5.11 xxx

A MASSIVE BIG HEARTFELT THANKS TO RICHARD AND JAMES HUNT OF 21C MOBILE SOLUTIONS BASED IN ILKESTON, FOR THE WONDERFUL DONATION OF £1,000 - ON BEHALF OF SOFT UK AND IMOGEN'S FAMILY. I CAN'T THANK YOU ENOUGH!

Thank you from SOFT and an update from Julie Wright who raised a whopping £2,339.50

Hi just to let you know on the 11th September I completed the Robin Hood Half Marathon in 2 hours 46 minutes depsite the dodgy knees and the nose bleed at 10 miles, it may have been a bit of a dad run at the end but I did it - I would like to give a massive thank you to all of the people who have sponsored me and all of the people who supported me through the training which started in April. It has been a pleasure to help raise some money for such a worthwhile cause, and in memory of such a little fighter, baby Imogen. Thanks again

A warm thank you too to Gemma Day who raised £150
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