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Heat Sensitivity

Babies with trisomy 18 may be sensitive to changes of temperature and can become distressed in hot weather.

One moment our son is hot, then blue with cold. I have to watch him closely. It's as though his body thermostat is not working properly.’

During the hot summer Jonathan became floppy and refused to drink. He was hospitalised, rehydrated and recovered. We never take him out in direct sunlight. Luckily we have one room that is always cool and he lives in it during a hot spell. We have noticed that his tolerance to light and heat has improved as he's got older.’

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