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Support from SOFT UK

The SOFT UK family support team can be contacted:

All members of the SOFT UK family support team are volunteers with personal experience of Trisomy 13, Trisomy 18 or related conditions. They have all completed a bereavement training course and have ongoing supervision.

As we are a small charity the telephone line is not permanently staffed. Please leave your name, number and query and we will always return your call. If we do not reply to an email within 24 hours, please resend the information in case we did not receive it.

We provide support to families:

  • Through prenatal diagnosis 
  • During pregnancy
  • When a pregnancy ends 
  • For families caring for a baby, child or adult with T18 or T13
  • Through loss, bereavement and grief
  • To families experiencing anxiety about future pregnancies

Support Volunteers

SOFT UK has trained volunteers who provide support to families via email, text and telephone. All our volunteers have had direct family experience of Trisomy. When we receive your enquiry, we will pass it on to the person who is best placed to support you - this may be the volunteer closest to you, or the one with knowledge or experience of your situation. We're only an email or a phone call away.