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Chromosome 18 Europe

Chromosome 18 Europe's 4th biennial European Conference which will be taking place in Rome from August 5th-7th 2016. More info and bookings forms are available from their website.

Staffing over the summer

We expect to have a new Charity Administrator on board in September. The administrator@soft.org.uk email will be monitored over the holidays but we apologise if it takes a little bit longer than usual to get a response. Many thanks.

Dr John Carey to attend SOFT UK's 25th anniversary weekend!

We are delighted that Dr John Carey will be among the guests joining us to celebrate 25 years of SOFT UK. It's all taking place on 14th and 15th May 2016 at the Hilton Northampton. See you there!

Family weekend

We've now closed online bookings for the family weekend in May. We'd still love to squeeze you in, if we can, so email us for details of how to book. 

Family Weekend 2016

Here's the plan for the SOFT UK 25th anniversary weekend. We look forward to seeing you all soon! (Hilton Northampton is NN4 0XW)

Agenda_2016.pdf 176.87 kB

Let us know what you think of SOFT UK

We're collecting views from SOFT families about the info and support we offer. If you have 5 mins to spare, please complete the online survey (which will be up until 10th June). Go to the survey.

Would you like to become a Trustee?

SOFT UK is currently recruiting for new members of the Board of Trustees. You can help shape the future of SOFT support for families affected by T13/18. Find out more.

Sign up now for 18th Sept

We are so pleased to have been chosen as a recipient of funding from this year's Jeans for Genes Day. Please do what you can to support this fantastic event!

Charity Golf Day - 17th Sept

Don't miss out on your tickets for the Charity Golf Day on Thurs 17th Sept at the Leatherhead Golf Club. Tickets for players are £55 (with £15 tickets for spectators). Held in memory of Alice, all proceeds go to Shooting Star Hospice, Chase and SOFT UK. More info here.

Colour Graphics

Huge thanks to James and the team at Colour Graphics for their incredibly generous donation of a SOFT banner, flyers and posters - all printed to our design. They'll be hugely useful at upcoming events where we'll be telling midwives and other clinicians more about the support SOFT offers. www.colourgraphics.com