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We can't explain how grateful we are to Syco and Together for Short Lives for the recent donation of over £13,000 (£13,409 to be precise). Thank you!
The SOFT Trustees would like to develop the support that we offer to siblings in families affected by trisomy 13, trisomy 18 and related conditions. As part of that process, they are considering commissioning Erica Brown from Coventry University to undertake a small piece of research on the impact of bereavement on siblings in affected families. This work will cover both siblings born before and born after the death of their sister or brother. We would like to gauge interest among SOFT families about being interviewed for this research - please could you let us know if you would be interested in taking part.