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Proposed new standards for health providers in NI

The Department for Health, Social Services and Public Safety is consulting on minimum care standards for independent healthcare establishments (bit.ly/1c8t9Pq).

Cerbera and Swansea Metropolitan University research on stress

Cerbera and Swansea Metropolitan University are carrying out research on stress in grandparents and siblings of children with neuro-developmental conditions and disorders. If you are interested in taking part in the interviews or completing the questionnaire please contact vicki.hardy@smu.ac.uk

Do your Christmas shopping on Amazon

Amazon UK will donate up to 10% of the value of any purchases you make. Just follow the Amazon link from the Shop page.

Donate by text

You can now donate to SOFT by text. Text SOFT01 £2 / £5 / £10 to 70070 to donate - eg to give £5 text SOFT01 £5

Dr. Carey Receives Prestigious Award

Dr. John C. Carey is the 2013 Rare Champion of Hope Medical Caregiver.


Fledglings is a national charity that finds and sells products that improve the lives of disabled children and their families.

SOFT UK Facebook Survey

SOFT UK is evaluating how to best provide online support to members. Share your views with us.

Know an extraordinary Carer? Give them the recognition they deserve

InsuranceWith, supported by Genetic Alliance UK, have launched the Who Cares Award to give carers the opportunity to be recognised for all of their hard work. The awards will be based on nominations from the public or through dedicated charities of those people who support others, dedicate their lives or put their lives on hold to care for others. Candidates can be young or old, a professional nurse or a relative. You can nominate someone you know here.

Siblings Research Project

Faith and Blair

Joanne Fullerton, a Trainee Clinical Psychologist with Bangor University is completing a study investigating the experiences of siblings of children with life limiting conditions. She is looking for volunteers to take part. The aim of the study is to better understand the experiences of this group of siblings. If you are the parent of a sibling aged between 3 and 16 years, and you and your sibling child wish to take part, simply email her on j.fullerton@bangor.ac.uk or contact her via telephone on 07957 620608