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Professionals

SOFT UK welcomes enquiries and comments from doctors, nurses and other professionals involved in the care of those affected by trisomy 13/18, Patau's and Edwards' syndromes, and related disorders.  
Register here for newsletters  
Research Papers read here  
email enquiries@soft.org.uk for professional enquiries

FASP Consultation

SOFT UK is a member of FASP and promoting their current consultation on antenatal testing.

18+0 to 20+6 weeks fetal anomaly scan: National standards and guidance for England

The NHS Fetal Anomaly Screening Programme is part of the UK National Screening Programmes Directorate and is recognised as an inclusive and transparent organisation responsible for developing national standards, policies and resources for biochemical and ultrasound screening technologies in pregnancy. During the course of developing standards, the NHS FASP obtains the broad opinion and views of stakeholders through consultation and this year professionals are invited to comment during a 4 week consultation on the '18+0 to 20+6 weeks fetal anomaly scan: National standards and guidance for England' (2010) publication.

You can link to the consultation HERE

SOFT Magazines

Jeans for Genes 2012

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Children with Edwards’ Syndrome, Patau’s Syndrome and related disorders given grant from Jeans for Genes Day 2012

SOFT UK Scottish Family Day November 12th 2011

The Scottish meeting was held on November 12th 2011 at the Dunblane Hydro Hotel, Dunblane,

21st SOFT Conference May 7-8th 2011

Conference 2011

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Conference 2011 photos