SOFT Children
Approximately 10% of babies with the full trisomy 13/18 survive infancy. Saskia, Katie, and Nigel were diagnosed with trisomy 13/ 18 and continue to amaze the medical profession.
Click the headings for the full story.
SOFT UK Support for Children with T13/18
Benefits of SOFT UK membership for children with T13/18
Saskia trisomy 18
Saskia celebrated her 19th birthday in February 2011, and is now the oldest surviving child in the UK with full trisomy 18, Edwards' syndrome,......
Katie trisomy 13
Our Katie has trisomy 13, Patau's syndrome, and is now 15 years old, .......
Nigel trisomy 13
NIGEL is aged 42 years old and the oldest person with trisomy 13 in the world,......
John Stephen Kerr 20th May 1988 – 23rd Oct 2007
A Life Worth Living by Fiona,.......
A Tribute to Elaine Fagan 1986-2011
Thank you to to Haaris Sheikh, Michael and Kay Fagan and SOFT Ireland.
For most people, when you mention Valentine’s day, a few things come to mind - flowers, chocolates, cuddly toys, cards and love.....
-
Saskia
-
Milly
-
Mhairi
-
Emma
-
Katie
2012 SOFT Weekend NEW LOCATION SOLIHULL Village Hotel May 5/6th
Solihull DeVere Village Hotel will be the 2012 venue for the SOFT Weekend.
There will be T13/18 specialist speakers, a Time of Remembrance, a family SOFT dinner on the evening of the 5th, and a balloon release.
To book a double room with breakfast at the hotel at a discount rate of £60, (small supplement for a family room) ring 0844 980 0118 reference 'SOFT050512'. Please book early to avoid disappointment.
Activities for children of all ages will replace the creche and the swimming leisure facilities are free to families who stay overnight.
Check back soon for Conference Booking Forms.
SOFT Magazines
- SOFT magazine - Daniela
- Autumn winter 2011
- Spring Summer 2011
- Autumn Winter 2010
- Spring 2010
- Autumn 2009
SOFT UK Scottish Conference November 12th 2011
The Scottish meeting was held on November 12th 2011 at the Dunblane Hydro Hotel, Dunblane,
21st SOFT Conference May 7-8th 2011
A brilliant Conference Weekend with a creche, talks, laughter and tears. Events arranged for members included a Time of Remembrance, balloons and sky lanterns........
Conference 2011
