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Approximately 10% of babies with the full trisomy 13/18 survive infancy. Saskia, Katie, and Nigel were diagnosed with trisomy 13/ 18 and continue to amaze the medical profession.
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SOFT UK Support for Children with T13/18

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 Benefits of SOFT UK membership for children with T13/18

Saskia trisomy 18

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Saskia  celebrated her 19th birthday in February 2011, and is now the oldest surviving child in the UK with full trisomy 18, Edwards' syndrome,......

Katie trisomy 13

Katy 1

Our Katie has trisomy 13, Patau's syndrome, and is now 15 years old, .......

Nigel trisomy 13

Nigel Falmouth Train

NIGEL is aged 42 years old and the oldest person with trisomy 13 in the world,......

John Stephen Kerr 20th May 1988 – 23rd Oct 2007

John 18th Birthday

A Life Worth Living by Fiona,.......

A Tribute to Elaine Fagan 1986-2011

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Thank you to to Haaris Sheikh, Michael and Kay Fagan and SOFT Ireland.
For most people, when you mention Valentine’s day, a few things come to mind - flowers, chocolates, cuddly toys, cards and love..... 

  • Saskia

    Saskia

  • Milly

    Milly

  • Mhairi

    Mhairi

  • Emma

    Emma

  • Katie

    Katie

SOFT Magazines

Jeans for Genes 2012

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Children with Edwards’ Syndrome, Patau’s Syndrome and related disorders given grant from Jeans for Genes Day 2012

SOFT UK Scottish Family Day November 12th 2011

The Scottish meeting was held on November 12th 2011 at the Dunblane Hydro Hotel, Dunblane,

21st SOFT Conference May 7-8th 2011

Conference 2011

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Conference 2011 photos