Children Related Disorders
Children who have a related disorder such as partial, mosaic, or ring trisomy 13/18 can have complex disabilities, or they may have a much more hopeful prognosis. Some children with mosaic trisomy 18 are attending main stream education with a little extra support. One young man with mosaic trisomy 13 is at university whereas another baby with the same condition did not survive birth. A young lady with ring trisomy 18 has had a successful heart valve replacement operation.
Click the headings to read the story.
Lewis
The fight for Lewis’ Education! by Helen
While Lewis appears to be affected minimally by mosaic trisomy 18 and in many respects he is, it became increasingly apparent to us that he started to struggle once he entered school in September 2006....
Lily
Lily. As in the flower, stands for Purity Innocence and Beauty. These words could easily be used to describe our lovely Lily, along with other not so flattering words such as cheeky, messy, stubborn and naughty....
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Adam
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Lily
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Carol
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Mia
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Rubi
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Naomi
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Samantha
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Faizan
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Ellie
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Lewis
2012 SOFT Weekend NEW LOCATION SOLIHULL Village Hotel May 5/6th
Solihull DeVere Village Hotel will be the 2012 venue for the SOFT Weekend.
There will be T13/18 specialist speakers, a Time of Remembrance, a family SOFT dinner on the evening of the 5th, and a balloon release.
To book a double room with breakfast at the hotel at a discount rate of £60, (small supplement for a family room) ring 0844 980 0118 reference 'SOFT050512'. Please book early to avoid disappointment.
Activities for children of all ages will replace the creche and the swimming leisure facilities are free to families who stay overnight.
Check back soon for Conference Booking Forms.
SOFT Magazines
- SOFT magazine - Daniela
- Autumn winter 2011
- Spring Summer 2011
- Autumn Winter 2010
- Spring 2010
- Autumn 2009
SOFT UK Scottish Conference November 12th 2011
The Scottish meeting was held on November 12th 2011 at the Dunblane Hydro Hotel, Dunblane,
21st SOFT Conference May 7-8th 2011
A brilliant Conference Weekend with a creche, talks, laughter and tears. Events arranged for members included a Time of Remembrance, balloons and sky lanterns........
Conference 2011
