Children Related Disorders
Children who have a related disorder such as partial, mosaic, or ring trisomy 13/18 can have complex disabilities, or they may have a much more hopeful prognosis. Some children with mosaic trisomy 18 are attending main stream education with a little extra support. One young man with mosaic trisomy 13 is at university whereas another baby with the same condition did not survive birth. A young lady with ring trisomy 18 has had a successful heart valve replacement operation.
Click the headings to read the story.
Lewis
The fight for Lewis’ Education! by Helen
While Lewis appears to be affected minimally by mosaic trisomy 18 and in many respects he is, it became increasingly apparent to us that he started to struggle once he entered school in September 2006....
Lily
Lily. As in the flower, stands for Purity Innocence and Beauty. These words could easily be used to describe our lovely Lily, along with other not so flattering words such as cheeky, messy, stubborn and naughty....
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Adam
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Lily
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Carol
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Mia
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Rubi
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Naomi
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Samantha
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Faizan
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Ellie
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Lewis
SOFT Magazines
- SOFT magazine - Daniela
- Spring Summer 2012
- Autumn winter 2011
- Spring Summer 2011
- Autumn Winter 2010
- Spring 2010
- Autumn 2009
Jeans for Genes 2012
Children with Edwards’ Syndrome, Patau’s Syndrome and related disorders given grant from Jeans for Genes Day 2012
SOFT UK Scottish Family Day November 12th 2011
The Scottish meeting was held on November 12th 2011 at the Dunblane Hydro Hotel, Dunblane,
21st SOFT Conference May 7-8th 2011
Conference 2011
