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Family Stories

Thank you so much to the SOFT members who have shared their experiences here. 

Elaine Fagan (1986-2011)

Screen shot 2011-08-14 at 13.22.14

Thank you to to Haaris Sheikh, Michael and Kay Fagan and SOFT Ireland.
For most people, when you mention Valentine’s day, a few things come to mind - flowers, chocolates, cuddly toys, cards and love. 

Isla (21 Feb 2011 - 29 Dec 2012)

Isla and sisters

When we were expecting our third baby we were delighted.  However from the early stages of the pregnancy there were complications. 

Amy (trisomy 18)


I read somewhere the other day “enjoy the small things in life, for one day, you will look back and realise they were the big things”. 

This definitely applies to living with a baby as special as Amy, and we do our best to savour every precious moment. 

Samuel Isaac Andrew (6 Jan 2014 - 9 Jan 2014)

Samuel Isaac

Samuel Isaac Andrew Robinson was born on 6th January 2014 and died on 9th January 2014 at 3 ½ days old. His parents, Jane and Andrew were told of Samuel’s diagnosis of Trisomy 13 when Jane was 21 weeks pregnant. They decided to carry on with the pregnancy.

Ellie (mosaic trisomy 18)

Ellie Cockburn

Ellie was born in May 2003 and weighed 4lbs 5oz. She was whisked into Special Care Baby Unit as she had issues regarding blood sugar and she had very poor sucking capabilities; therefore feeding was a difficulty. 

Lewis (mosaic trisomy 18)

Leiws on the train

July saw Lewis leaving his primary school ready to start at secondary school in September. The children had a fantastic send off from Helmdon and it was wonderful to see how caring his class were right to the end! 

Jack David (9 Feb 2010 - 12 Mar 2010)

Jack 2 030-2

I remember when we first told Charlotte (5) and Harry (3) they were going to have a baby brother or sister. 

Eve Charlotte (4 Jan 2010 - 4 Feb 2010)


The day had arrived when I would meet my baby. I was 42 weeks pregnant and going into hospital to have my 
labour induced. At 11.12pm on Monday 4th January 2010 my beautiful baby girl Eve Charlotte was born. Eve weighed 5lb 8oz and was much smaller than my other two girls Ellie and Grace when they were born. Eve was perfect. 

Nigel (9 Oct 1968 - 29 Jan 2016)

Nigel Falmouth Train

Sadly, Nigel passed away peacefully at home on January 29th 2016 after a short illness. He had reached the remarkable age of 47.