Home > SOFT Children > Health Issues



Health Issues

GROWTH CURVES

A baby with trisomy 13 or trisomy 18 is not expected to gain weight and height as quickly as a healthy infant. Dr John Carey, Editor in Chief of the American Journal of Medical Genetics and senior author on the original article by Baty et al. (where the original growth curves were published in 1994) and Ann M Barnes, author of  "The Care of the Infant and Child with Trisomy 18 or 13" (published by SOFT USA),  have kindly given permission to reproduce the weight, height and head circumference curves below. Click on the pdfs below.

Lets talk about sex

Relationships, sexual health and sexuality guidance for families and professionals....

SOFT Magazines

Jeans for Genes 2012

banner
logos
Children with Edwards’ Syndrome, Patau’s Syndrome and related disorders given grant from Jeans for Genes Day 2012

SOFT UK Scottish Family Day November 12th 2011

The Scottish meeting was held on November 12th 2011 at the Dunblane Hydro Hotel, Dunblane,

21st SOFT Conference May 7-8th 2011

Conference 2011

P1010476

Conference 2011 photos