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Kobi Benjamin James

Kobi Benjamin James 19/01/2016 – 20/01/2016

I was 37+4 into my 3rd pregnancy when I was rushed for an emergency c-section. At this point we where completely unaware that our precious little baby boy had anything wrong with him. Kobi was then rushed off into NICU where he was put on tons of machines to help him breath. On further investigation Kobi was born with 3 holes in his heart under and developed lungs. Some of Kobi's features where a concern for some of the nurses who believe he could have downs syndrome. The consultant then explained she was almost certain he was suffering with Trisomy 18 or Edwards syndrome. Tests where sent off and results finally came back after Kobi had passed verifying trisomy 18. Kobi lived for 29 hours with the help of machines.

SOFT Child

Kobi Benjamin James

Condition: T18
Relationship: mummy