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Leah Cerys

Leah Cerys 31/12/2010 – 06/02/2011

My precious Daughter; Leah Cerys was born with Edwards Syndrome, and lived for 37 days. In that short time Leah would always let you know when it was time for a new nappy or she was hungry and we therefore gave her the title "Our Lady With Attitude". xxxxxx

We were given the devastating news about Leah Cerys' terminal illness five days after her birth, and left Birmingham Womens Hospital knowing very little about Edwards Syndrome. We were very fortunate to be put in touch with Acorns Childrens Hospice based in Walsall, and with their love and support we were able to spend time as a family and come to terms with losing our lovely Leah. It also allowed my Son; Callum to spend quality time with his little Sister, and they became devoted to each other. Callum would often sit in his little blue chair, holding the V-Cushion and giving it a tap when it was time for Leah to be put in his gentle care. Only Callum was allowed to give Leah a "smacker" on the lips and that is exactly how I wanted it to be. Leah Cerys is forever in our thoughts and will always be an important member of our family.... "Our Lady With Attitude" is gone but certainly not forgotten!! xxxxxxx

SOFT Child

Leah Cerys

Condition: T18
Relationship: Mother