SOFT UK Children - listed by date
Eva Rose 16/08/2011 - 18/10/2011
We did not know Eva had Edwards Syndrome when she was born, the first four weeks of her life where filled with so much pain for her and us. We did however manage to take her home for eight beautifu...
star 01/05/2011 - 01/05/2011
Our beautiful baby star was born on Mayday 2011 at only 21 weeks after having a prenatal diagnosis of trisomy 18, she will forever be a part of our family.
Baby 02/03/2011 - 02/03/2011
12 week scan showed a massive exomphalos, bloods showed 1:5 for edwards, cvs confirmed
Leah Cerys 31/12/2010 - 06/02/2011
My precious Daughter; Leah Cerys was born with Edwards Syndrome, and lived for 37 days. In that short time Leah would always let you know when it was time for a new nappy or she was hungry and we...
Cathal 08/07/2010 - 08/07/2010
Cathal was diagnosed with full trisomy 18 at 26 weeks gestation.He was born at 12.08pm on the 8th of july 2010 and grew his wings at 8.20pm..8 hours and 12 precious minutes later.Cathal got to meet...
Aimee Melody 27/06/2010 - 27/06/2010
Aimee Melody 27/06/10 - 27/06/10 Trisomy 13.
Liam 17/10/2009 - 09/11/2009
Liam was diagnosed with Edwards Syndrome (T18) at 15 weeks, we were offered a termination but decided against this and to let Liam choose his path in life. Liam was born 9 weeks early, weighing jus...
Simon Lee 10/07/2009 - 10/07/2009
Diagnosed at 26 weeks gestation with Edwards Syndrome, made it to 31weeks gestation, lived for one hour and changed my life forever.
Adam Raymond 12/05/2003 - 04/07/2003
ADAMS POEM
BORN OF LOVE – IN INNOCENCE
YOU CAME INTO THE WORLD
A BREATH OF SPRING – A MIRACLE
A BUD AS YET UNFURLED
A TINY TRUSTING LIVING FORCE
HO...
Joshua Michael 19/10/1995 - 24/02/1996
Joshua's condition was discovered during a routine scan. We chose to continue with the pregnancy and Joshua lived for 4 months, for much of the time he was at home with us and we are very greatful...
