Home > SOFT Children > SOFT UK Children - listed by date

SOFT UK Children - listed by date


Below is a list of all the SOFT UK babies and children, with the most recently born at the top.

Please note that all information is uploaded and maintained by families themselves. Some children's information will only be available to members, as per their parents' wishes.  If you cannot find a baby or child you are looking for, this could be the reason why.  

If you would like to create a profile for your own baby or child, please click the Join Us tab above and follow the instructions.

Nafeesah Amin   17/03/2017

SOFT Child

Our beautiful daughter diagnosed with T18, 2 days after her birth. The outlook presented to us was that she would expire within days. At the time of registering with Soft, Nafeesah will be 5 months...

Eliana   14/01/2017

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Our Daughter was born with T18. She was not diagnoses until she was born and her condition was a shock to us as parents and the medical professionals who delivered her. Since her birth we have had...

Baby Millington   05/01/2017

SOFT Child

Baby Millington was diagnosed with Patau's syndrome at 14 weeks. Mum and Dad decided for the sake of baby's quality of life to go ahead with an induced miscarriage. Baby Millington is sorely missed...

molly matthewman   13/12/2016 - 06/01/2017

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found out when molly was three days old she had t18 when she was at freemans hospital in newcastle for a heart op

Elijah-Braxton Denizel   30/11/2016 - 30/11/2016

SOFT Child

Born Sleeping 21 weeks 1 day . holoprosencephaly and ventricular septal defect , proboscis , Cyclopia and no nose

Katie-rae rogers   10/08/2016

SOFT Child

Katie-rae was born 10/08/16 via c section weighing 4lbs. She has spina bifida, a large vsd and pulmonary hypertension. She is doing fantastic and keeps proving all the doctors wrong.

Apple   17/04/2016 - 17/04/2016

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Beautiful baby girl. Loved.

Indie-Ray Cunniffe   07/04/2016 - 07/04/2016

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Our beautiful Skew-Whiff little boy was born asleep on 7th April 2016 @ 21.00, diagnosed with Patau's Syndrome, Schizencephaly & Holoprosencephaly at 20 week anomaly scan.

Tulip May Marshall   17/03/2016 - 17/03/2016

SOFT Child

Our much loved baby girl Tulip was diagnosed with a severe heart defect at our 20 week scan, an amniocentesis confirmed it was caused by T18. She was born at peace 11 days later. Our hearts are bro...

Lucy Connor   22/02/2016

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Currently pregnant with child with ft18.latest scan showed no heart liver or kidney problems and the 7mm cystic hygroma and hydrous have amazingly resolved