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SOFT UK Children - listed by date

Ayla

Below is a list of all the SOFT UK babies and children, with the most recently born at the top.

Please note that all information is uploaded and maintained by families themselves. Some children's information will only be available to members, as per their parents' wishes.  If you cannot find a baby or child you are looking for, this could be the reason why.  

If you would like to create a profile for your own baby or child, please click the Join Us tab above and follow the instructions.

Rory Edward Emblen   06/03/1991 - 15/03/1991

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Rory was born early by emergency C-section. He was immediately taken to SCBU where it became apparent that all was not well. On his 9th day of life he was diagnosed with Trisomy 18 and we were told...


Ashley Mawson   19/12/1990

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Ashley is living life to the full defying the odds.


Hannah Edmonds Edmonds   12/10/1989

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Hannah was diagnosed after birth and was very poorly, my parents were told that she wouldn't survive for very long. My sister is now 24 and enjoying life, she is rarely ill and doesn't complain wh...


Beth Robbins   23/06/1988 - 24/09/1988

SOFT Child

Beth was diagnosed with trisomy 13 when she was 4 days old and we were asked if we wanted to leave her at the hospital since the condition was considered terminal. Beth lived for three months and w...


Jonathan Rose   14/03/1988 - 29/07/2007

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Jonathan acted as if he had full T18 rather than the partial form as he was unable to walk and needed full time care. Apparently his condition is rare and it is the long arm of 18 (q) which determi...


Taryn Marie Phelps   11/02/1985 - 01/03/1985

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Taryn was born with undetected full Trisome 13 ( Patau Syndrome) she was our 2nd child . After the birth the family was tested and it was found that i was a carrier of the gene and so was our 3yr o...


Baby Griessel   - 05/08/2011

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This is our first baby, we looked so forward to starting our own family! We found out that our little baby had this condition on our first scan the most exciting experience in our lives. I had to h...


Freya Mills   - 18/10/2011

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Angel Brooks   - 04/02/2011

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My child was terminated in february 2010 as it's disabilities were detected as too servere for any way of life. i regret to this day, never meeting that beautiful baby of mine.


Harriett Evans   - 09/08/2013

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We found out that our baby had something wrong at our 12 week scan. It turned out that our baby girl had trisomy 13