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SOFT UK Children - listed by name


Below is a list of all the SOFT UK babies and children, in alphabetical order.

Please note that all information is uploaded and maintained by families themselves. Some children's information will only be available to members, as per their parents' wishes.  If you cannot find a baby or child you are looking for, this could be the reason why.  

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Lilian Matika   - 08/12/2014

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Forced to have a termination for medical reasons (T18) at 14w 2d. God has called back his angel. Till we meet again darling daughter. Rest in everlasting peace. Mum and Dad

Lily Orme   10/05/2006

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Lily is T18 Mosaic

Lily Margaret Smith   04/02/2016 - 06/03/2016

SOFT Child

In memory of our beautiful daughter, Lily Margaret Smith. Following a very healthy pregnancy, Lily was born at 39 weeks weighing 6lb 6oz. Lily was unfortunately diagnosed with full T13 at 1 week...

Lily Rose Masley   27/08/2013 - 27/08/2013

SOFT Child

Lily was diagnosed with T13 at the 20 week scan. We decided to carry on with the pregnancy and were rewarded with a precious couple of hours with her before she fell asleep in our arms.

Lola Hillyard   13/05/2015 - 28/05/2015

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We never knew that Lola had T13, my pregnancy and scans had been fine with no problems. It was only when she had trouble feeding she went to the Neonatal unit and 2 weeks later tests showed she ha...

Lucas Hart   19/07/2000 - 29/08/2000

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Lucas was born with T13 and lived for 5 weeks and 6 days. We had no idea about his condition until he was born

Lucy Connor   22/02/2016

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Currently pregnant with child with ft18.latest scan showed no heart liver or kidney problems and the 7mm cystic hygroma and hydrous have amazingly resolved

Luke Ryan   16/07/1998 - 16/07/1998

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My gorgeous baby boy born sleeping xx

Luke Barratt   21/02/1992

SOFT Child

Luke was born with trisomy 13 mosaic. He is doing so well, has great character and sense of humour, attended resourced education within a mainstream local school.

Luna Conner   30/05/2014 - 05/06/2014

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I didnt know Luna had T18 until she was 5 days old