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SOFT UK Children - listed by name


Below is a list of all the SOFT UK babies and children, in alphabetical order.

Please note that all information is uploaded and maintained by families themselves. Some children's information will only be available to members, as per their parents' wishes.  If you cannot find a baby or child you are looking for, this could be the reason why.  

If you would like to create a profile for your own baby or child, please click the Join Us tab above and follow the instructions.

Lyla Teece   10/07/2014 - 29/08/2014

SOFT Child

Baby girl was diagnosed a week after birth and spent 2 weeks in hospital then 5weeks in a hospice and less than 24 hours at home

Martha Swaby   02/10/2014 - 30/09/2014

SOFT Child

Our beautiful baby girl Martha was diagnosed with Trisomy 18, Edwards Syndrome, at 24 weeks of pregnancy. She was stillborn shortly afterwards. We will always love her, always miss her.

Maya Kujoth   - 02/05/2014

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My baby was diagnosed with Patau's Syndrome. I lost Maya when i was 14 weeks preganant...

molly matthewman   13/12/2016 - 06/01/2017

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found out when molly was three days old she had t18 when she was at freemans hospital in newcastle for a heart op

Myla Faith McCabe   02/07/2013 - 02/07/2013

SOFT Child

My little angel was born and grew her wings on 02/07/13 after 1 hour and 55 minutes with me. I have set up a Facebook page dedicated to her, look up Myla Faith Trisomy 18 and please have a read at...

Nafeesah Amin   17/03/2017

SOFT Child

Our beautiful daughter diagnosed with T18, 2 days after her birth. The outlook presented to us was that she would expire within days. At the time of registering with Soft, Nafeesah will be 5 months...

Natalie Elizabeth Stagg   11/01/1993 - 11/01/1993

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My beautiful daughter Natalie

Nimmi Browne   21/07/2014

SOFT Child

Nimmi was born with Edwards Syndrome. She is now 18 months young. She is a very happy baby. She laughs a lot, loves watching footbal and likes to play, reaching out for her toys. She amazes us e...

Noah Linster-Ali   18/01/2006 - 05/07/2009

SOFT Child

He taught us so much in his 3 and a half years that will last a lifetime............

Oscar-nicholas Cooper   24/11/2014 - 07/12/2014

SOFT Child

I found out there was abnormalitys at my 20 week scan i had regular detailed scans and doctors suspected T18 (edwardssyndrome) only 2 days after he was born we found out my little boy was fighting...