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SOFT UK Children - listed by name


Below is a list of all the SOFT UK babies and children, in alphabetical order.

Please note that all information is uploaded and maintained by families themselves. Some children's information will only be available to members, as per their parents' wishes.  If you cannot find a baby or child you are looking for, this could be the reason why.  

If you would like to create a profile for your own baby or child, please click the Join Us tab above and follow the instructions.

SHANNON MCCALLAM   23/06/1997 - 04/09/1997

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Lost my daughter to edwards syndrome at ten weeks old.

Simon Lee James   10/07/2009 - 10/07/2009

SOFT Child

Diagnosed at 26 weeks gestation with Edwards Syndrome, made it to 31weeks gestation, lived for one hour and changed my life forever.

sofia hannah ormerod   07/10/2013 - 20/12/2013

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Sofia's short but happy life

Sonny Davison   08/11/2011 - 08/11/2011

SOFT Child

Sonny was stillborn following a diagnosis of full trisomy 18.
He was beautiful. We miss him everyday.

Sophia Colley   16/11/2014

SOFT Child

my precious daughter was born on the 16th November weighing 6lb 2oz.I wasnt aware of her T18 until 4 days after.she has low setting ears ,a slighty smaller than average jaw.her heart has a ASD and...

Soumaya Chaima Boveda   26/09/2013 - 14/10/2013

SOFT Child

our little fighter

star knowlton   01/05/2011 - 01/05/2011

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Our beautiful baby star was born on Mayday 2011 at only 21 weeks after having a prenatal diagnosis of trisomy 18, she will forever be a part of our family.

Taryn Marie Phelps   11/02/1985 - 01/03/1985

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Taryn was born with undetected full Trisome 13 ( Patau Syndrome) she was our 2nd child . After the birth the family was tested and it was found that i was a carrier of the gene and so was our 3yr o...

Tayla Lewington   23/08/2007 - 23/08/2007

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I found out at my 20 scan that my baby girl had Trisomy 13 and she was born on the 23rd August 2007

Teagan Louise Speck   04/12/2013 - 27/12/2013

SOFT Child

we didn't know!