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SOFT UK Children - listed by name


Below is a list of all the SOFT UK babies and children, in alphabetical order.

Please note that all information is uploaded and maintained by families themselves. Some children's information will only be available to members, as per their parents' wishes.  If you cannot find a baby or child you are looking for, this could be the reason why.  

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Devon   21/01/2005 - 21/01/2005

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I was told Devon had Edwards syndrome he passed when I was 33 weeks

Dylan Edge   21/09/2010

SOFT Child

Dylan has T13mosaicism with congenital hyperinsulinism

Edith Bethalmie Powponne   11/02/1995 - 11/02/1995

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Edie was born asleep. She was much wanted and loved and will never be forgotten.

Eliana   14/01/2017

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Our Daughter was born with T18. She was not diagnoses until she was born and her condition was a shock to us as parents and the medical professionals who delivered her. Since her birth we have had...

Elijah-Braxton Denizel   30/11/2016 - 30/11/2016

SOFT Child

Born Sleeping 21 weeks 1 day . holoprosencephaly and ventricular septal defect , proboscis , Cyclopia and no nose

Ella Rose Collins   08/09/2015 - 08/09/2015

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Your Wings Were Ready,
But Our Hearts Were Not....

Ella Rose Parker   19/09/2014 - 19/09/2014

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My beautiful girl, born asleep at 31 weeks x

Ella-Mae Hewitt   28/04/2006 - 04/05/2006

SOFT Child

Ella-Mae was born with us having no knowledge of her condition. After numerous scans not one thing was picked up.
She lived for 7 days,and gave a life time of love in her short time here wi...

Ella-may Cole   01/07/2015

SOFT Child

Our beautiful ella-may was born 18 months ago postnatlally diagnoised with T18 at 10 days old

Elliot Markham   08/06/2012 - 09/06/2012

SOFT Child

Baby Elliot Antony Leonard Markham was born on 8.6.12 at 40 weeks and 2 days. He weighed 3lb and 14oz and had Edwards Syndrome. We were lucky to be able to bring him home and he died peacefully 17...