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SOFT UK Children - listed by name


Below is a list of all the SOFT UK babies and children, in alphabetical order.

Please note that all information is uploaded and maintained by families themselves. Some children's information will only be available to members, as per their parents' wishes.  If you cannot find a baby or child you are looking for, this could be the reason why.  

If you would like to create a profile for your own baby or child, please click the Join Us tab above and follow the instructions.

Emily Rosa   26/02/2011 - 26/02/2011

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Erin Darcy O'Grady   19/09/2013 - 26/09/2013

SOFT Child

“A tiny flower lent, not given, to bud on earth and bloom in heaven”

Our beautiful daughter and precious little fighter, who fell asleep in her heartbroken Mummy and Daddy's arms on...

Ethan Shale   01/03/2014 - 01/03/2014

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Born sleeping at 16 weeks, 3 days following the diagnosis of Patau Syndrome x

Still currently pregnant with our precious little boy, we only found out 7 days ago that he has trisomy 18/Edwards syndrome.

Ethan Williamson   08/06/2012 - 08/06/2012

SOFT Child

Our beautiful boy Ethan was diagnosed with multiple heart defects due to full trisomy 13 at our 20 week scan. We chose to continue to term. When we found out our baby to be's condition, we decided...

Eva Rose Crossley   16/08/2011 - 18/10/2011

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We did not know Eva had Edwards Syndrome when she was born, the first four weeks of her life where filled with so much pain for her and us. We did however manage to take her home for eight beautifu...

Evie Louise Scott   22/11/2009 - 22/11/2009

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My wife Anne and I sadly lost our precious little angel on my Birthday 22nd November. It's lovely to know we share something but we wish she was here to share it with us.

Ffion Irene Hope   01/04/2015 - 01/04/2015

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My fiancé and I had never heard of T18 until our 20 week scan. Ffion was born asleep 2 days after we had found out that she had the condition.

Freya Mills   - 18/10/2011

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Hannah Sutton   14/09/1993

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Hannah has Pataus Syndrome, she has quite severe learning disabilities but continues to make small steady progress at college. She has had to endure many operations and is now 20 years old