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SOFT UK Children - listed by name


Below is a list of all the SOFT UK babies and children, in alphabetical order.

Please note that all information is uploaded and maintained by families themselves. Some children's information will only be available to members, as per their parents' wishes.  If you cannot find a baby or child you are looking for, this could be the reason why.  

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Hannah Johnson   06/08/1996 - 11/09/1996

SOFT Child

Our beautiful angel was with us for just 5 weeks but we filled those precious times with lots of lovely memories.

Hannah Edmonds Edmonds   12/10/1989

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Hannah was diagnosed after birth and was very poorly, my parents were told that she wouldn't survive for very long. My sister is now 24 and enjoying life, she is rarely ill and doesn't complain wh...

Harriet Doughty   14/03/2015 - 14/03/2015

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Our baby girl was diagnosed with Trisomy 18 at 35 wks after markers for Trisomy had been discovered at 28wks scan. Harriet passed away at 36 weeks.

Harriett Evans   - 09/08/2013

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We found out that our baby had something wrong at our 12 week scan. It turned out that our baby girl had trisomy 13

Harry Lambourne/Thompson   15/04/1995 - 15/04/1995

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Harry was born at 22/40 he was born sleeping and diagnosed with trisomy 18 a week before on my 20 week scan.

Harry Robert MacDonald   05/07/2012 - 05/07/2012

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Our beautiful little angel - we miss you

Hebe Saunderson   09/09/2011

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Hebe left us in the very early hours of Friday 9 September 2011. She was my first and only child and I miss her every day.

Henry Thomas Singleton-Carby   27/04/2012 - 27/04/2012

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Our beautiful boy was born fast asleep having been diagnosed with Trisomy 13 previously. He went on ahead of us to be an Angel to look over us till we get there and take over. x

Imogen Shouler   03/05/2011 - 08/05/2011

SOFT Child

Imogen was born at 39 weeks with full T13 at 08:24 on 3rd May 2011 We knew she had T13 already so we had prepared ourselves for the worse. She amazed the drs by living for 5 days and sadly went to...

Indie-Ray Cunniffe   07/04/2016 - 07/04/2016

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Our beautiful Skew-Whiff little boy was born asleep on 7th April 2016 @ 21.00, diagnosed with Patau's Syndrome, Schizencephaly & Holoprosencephaly at 20 week anomaly scan.