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SOFT UK Children - listed by name


Below is a list of all the SOFT UK babies and children, in alphabetical order.

Please note that all information is uploaded and maintained by families themselves. Some children's information will only be available to members, as per their parents' wishes.  If you cannot find a baby or child you are looking for, this could be the reason why.  

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Isla-Grace Helen Cooney   17/07/2014 - 16/07/2014

SOFT Child

My precious Isla-Grace became an angel too soon, at 30 weeks, in my tummy on 16th July 2014. She was born on July 17th to me, her proud Daddy, and her older sister and brother. We will miss you til...

James   05/11/2011 - 05/11/2011

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James heart stopped on 3/11/11 and we gave birth to him on 5/11/11 he was our hope and dreams after 2 prior mc and he is our firstborn x

Jessica Leanne Lomas-Nield   13/04/2012 - 13/04/2012

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On the 20 week scan it was picked up that Jess had edwards syndrome, which was confirmed by amnio at 28 weeks We chose not to terminate as we wanted her to decided when she went to sleep. She was b...

Jonathan Rose   14/03/1988 - 29/07/2007

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Jonathan acted as if he had full T18 rather than the partial form as he was unable to walk and needed full time care. Apparently his condition is rare and it is the long arm of 18 (q) which determi...

Joseph Madge   26/03/2007 - 27/03/2007

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We discovered that Joseph had some problems at the 20 week scan. We continued with the pregnancy, knowing he would probably die in utero, but wanting to give him the choice of when to die. He was...

Joseph Boothe   13/05/2015

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He is super smiley, sweet and tender spirited. He is the most joyful little sweet pea who is the light of our lives.

Joshua Michael Talbot   19/10/1995 - 24/02/1996

SOFT Child

Joshua's condition was discovered during a routine scan. We chose to continue with the pregnancy and Joshua lived for 4 months, for much of the time he was at home with us and we are very grateful...

julianne mcdowall   10/04/2014 - 15/04/2014

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Julianne was thought to have been affected by T18 from around 18 weeks though her parents chose not to have this confirmed by amniocentesis. She was born 4 weeks premature at 3lb 11oz with visible...

Kate-Lynne van Tonder   04/12/2009 - 12/03/2010

SOFT Child

Kate-Lynne was breach and so I had to go to Aberdeen to have a ceserean section, when born she was struggling to breath and was taken to the neo-natal unit. Kate-Lynne was diagnosed when she was a...

Katie Ross   03/04/2013 - 07/04/2013

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Katie was born 6 weeks premature and was only diagnosed with T18 one day after she was born. We had a wonderful four days with her before she fell asleep in our arms.