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Support

SOFT UK provides support to families affected by Trisomy 13, Trisomy 18 and related disorders.  We provide support to families

  • Through prenatal diagnosis 
  • During pregnancy
  • When a pregnancy ends 
  • For families caring for a baby, child or adult with T13 or T18
  • Through loss, bereavement and grief
  • To families experiencing anxiety about future pregnancies

SOFT UK provides support in the following ways:

  • a range of publications to give you information about Trisomy 13, Trisomy 18 and related disorders
  • Family Events where you can get information and meet other families with Trisomy experiences
  • trained Support Volunteers who can give you 1-2-1 support and advice via email or telephone

If you would like to be put in contact with one of our support volunteers, or are looking for further information, please use our CONTACT FORM.

'We found SOFT through the internet after returning from hospital and their booklets were a great source of comfort. We contacted a SOFT befriender, and speaking to someone who had lived through a similar experience gave us the strength we needed.'                  

SOFT Magazines

Jeans for Genes 2012

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Children with Edwards’ Syndrome, Patau’s Syndrome and related disorders given grant from Jeans for Genes Day 2012

SOFT UK Scottish Family Day November 12th 2011

The Scottish meeting was held on November 12th 2011 at the Dunblane Hydro Hotel, Dunblane,

21st SOFT Conference May 7-8th 2011

Conference 2011

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Conference 2011 photos