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Email and Telephone Support

SOFT UK has trained volunteers who provide support to families via email and telephone.  All our volunteers have had direct family experience of Trisomy.

Some of the circumstances we can provide support in are:

  • Through prenatal diagnosis
  • During pregnancy
  • When a pregnancy ends
  • For families caring for a baby, child or adult with T13 or T18
  • Through loss, bereavement and grief
  • To families experiencing anxiety about future pregnancies 

If you would like more information or would like to be put in touch with one of our volunteers, please use the CONTACT FORM, email enquiries@soft.org.uk or ring the SOFT UK enquiry line on 07923 056 132.

When we receive your enquiry, we will pass it on to the person who is best placed to support you.  This usually means the Volunteer closest to your own location, so that they have knowledge specific to your area.  However if your enquiry is very specific we may pass it on to another person who has knowledge or experience of your situation.

We aim to contact you within 48 hours of your enquiry. However as we are all volunteers, there are occassions when this is not possible.  If you have waited more than 3-4 days for a response, please contact us again in case we have not received your message.

Please look at the following pages for details of the volunteers in your area.  It is often comforting to have some knowledge about the people who may be contacting you.

SOFT Magazines

Jeans for Genes 2012

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Children with Edwards’ Syndrome, Patau’s Syndrome and related disorders given grant from Jeans for Genes Day 2012

SOFT UK Scottish Family Day November 12th 2011

The Scottish meeting was held on November 12th 2011 at the Dunblane Hydro Hotel, Dunblane,

21st SOFT Conference May 7-8th 2011

Conference 2011

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Conference 2011 photos