Email and Telephone Support
- Through prenatal diagnosis
- When a pregnancy ends
- During a 13/18 pregnancy
- Loss, bereavement or sibling grief
- The anxiety of another pregnancy
- Caring for a baby,a child with learning disabilities, or a child with complex disabilities and needs
For the telephone numbers of SOFT UK volunteers
ring the SOFT UK anwer machine 0121 351 3122
If you have made a direct enquiry and not received a response please email enquiries@soft.org.uk
Email and phone support - Laura
prenatalchoices@soft.org.uk
Having made the decision to carry on with one pregnancy, and terminate a pregnancy with severe abnormalities I felt that I could understand how difficult it was to come to each decision. I now help SOFT UK and ARC when parents want to talk to someone after a prenatal diagnosis.
Email and phone support - Amanda
telephonesupport@soft.org.uk
I am Amanda and one of the telephone and email support helpers at SOFT. I first became involved with SOFT in 1995 when we got the news when I was 22 weeks pregnant with our second son Joshua that he had trisomy 13.
We chose to carry on with the pregnancy, and during this difficult time the information and support from SOFT was very helpful.
Trisomy 13 Link Parent
Use the contact us form to get in touch with us.
My youngest son Nigel is 42 and is believed to be the oldest survivor in the world with trisomy 13 Patau's syndrome.Hi, I am Rita and I am 69 years of age and married to Gerry. We live in Cornwall and have 2 daughters, Jackie and Josie and a son, Nigel.
2012 SOFT Weekend NEW LOCATION SOLIHULL Village Hotel May 5/6th
Solihull DeVere Village Hotel will be the 2012 venue for the SOFT Weekend.
There will be T13/18 specialist speakers, a Time of Remembrance, a family SOFT dinner on the evening of the 5th, and a balloon release.
To book a double room with breakfast at the hotel at a discount rate of £60, (small supplement for a family room) ring 0844 980 0118 reference 'SOFT050512'. Please book early to avoid disappointment.
Activities for children of all ages will replace the creche and the swimming leisure facilities are free to families who stay overnight.
Check back soon for Conference Booking Forms.
SOFT Magazines
- SOFT magazine - Daniela
- Autumn winter 2011
- Spring Summer 2011
- Autumn Winter 2010
- Spring 2010
- Autumn 2009
SOFT UK Scottish Conference November 12th 2011
The Scottish meeting was held on November 12th 2011 at the Dunblane Hydro Hotel, Dunblane,
21st SOFT Conference May 7-8th 2011
A brilliant Conference Weekend with a creche, talks, laughter and tears. Events arranged for members included a Time of Remembrance, balloons and sky lanterns........
Conference 2011
