Trisomy 13/18
‘In many instances we don't know the answers. Why it happens is a mystery. We know what happens but nobody knows why it happens.’ Dr. Ian Young: Professor of Paediatric Genetics, former SOFT Medical Advisor. Click the headings for information.
Why Us
Nobody knows. Every pregnant woman has a slight risk of having a baby with a chromosome defect. About one in every 200 births is affected,....
Patau’s and Edwards’ syndromes
This karyotype shows three number 13 chromosomes among the normal pairs. The tri in the word trisomy means three....
How rare are Patau’s or Edwards’ syndromes?
In the 12 months April 2008 to April 2009 there were 172 diagnoses of Patau’s and 495 diagnoses of Edwards’ syndrome,....
2012 SOFT Weekend NEW LOCATION SOLIHULL Village Hotel May 5/6th
Solihull DeVere Village Hotel will be the 2012 venue for the SOFT Weekend.
There will be T13/18 specialist speakers, a Time of Remembrance, a family SOFT dinner on the evening of the 5th, and a balloon release.
To book a double room with breakfast at the hotel at a discount rate of £60, (small supplement for a family room) ring 0844 980 0118 reference 'SOFT050512'. Please book early to avoid disappointment.
Activities for children of all ages will replace the creche and the swimming leisure facilities are free to families who stay overnight.
Check back soon for Conference Booking Forms.
SOFT Magazines
- SOFT magazine - Daniela
- Autumn winter 2011
- Spring Summer 2011
- Autumn Winter 2010
- Spring 2010
- Autumn 2009
SOFT UK Scottish Conference November 12th 2011
The Scottish meeting was held on November 12th 2011 at the Dunblane Hydro Hotel, Dunblane,
21st SOFT Conference May 7-8th 2011
A brilliant Conference Weekend with a creche, talks, laughter and tears. Events arranged for members included a Time of Remembrance, balloons and sky lanterns........
Conference 2011
