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Advice for Pregnancy

If you decide to continue with your pregnancy, there are many things you may wish to consider.  Carrying a baby with Trisomy 13 or 18 may mean:
*   there is an increased risk of premature labour
*   the baby may be miscarried, stillborn, or die shortly after birth
*   you may be able to take the baby home

Click the headings for further information.

During the pregnancy

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You do not know how long your child will live and the pregnancy is a precious time. You need positive support from the medical staff, preferably the same obstetrician and midwives to avoid constant explanations when you are examined....

When a baby is stillborn or dies shortly after birth

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Babies with a severe chromosome abnormality may suffer from major medical problems and be stillborn or die shortly after birth......

Simon James Friday July 10th 2009: 00.10 – 1.10am by Stacey

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Finding out I was pregnant was the best news as we had been trying for a year. Like every other pregnancy, we were thrilled that we were going to have our own baby.... 

Charlotte 26.11.06- 29.05.07 by Laura

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In March 2006 we found out I was pregnant. The pregnancy was not planned and came as a total shock to both of us and it was around the eight week mark I began suffering from all day sickness....... 

Jack David 9.02.10 - 12.03.10 by John and Louise

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I remember when we first told Charlotte (5) and Harry (3) they were going to have a baby brother or sister...... 

2012 SOFT Weekend NEW LOCATION SOLIHULL Village Hotel May 5/6th

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Solihull DeVere Village Hotel will be the 2012 venue for the SOFT Weekend.

There will be T13/18 specialist speakers, a Time of Remembrance, a family SOFT dinner on the evening of the 5th, and a balloon release.

To book a double room with breakfast at the hotel at a discount rate of £60,  (small supplement for a family room)  ring 0844 980 0118 reference 'SOFT050512'. Please book early to avoid disappointment.

Activities for children of all ages will replace the creche and the swimming leisure facilities are free to families who stay overnight.

Check back soon for Conference Booking Forms.

SOFT Magazines

SOFT UK Scottish Conference November 12th 2011

The Scottish meeting was held on November 12th 2011 at the Dunblane Hydro Hotel, Dunblane,

21st SOFT Conference May 7-8th 2011

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A brilliant Conference Weekend with a creche, talks, laughter and tears. Events arranged for members included a Time of Remembrance, balloons and sky lanterns........ 

Conference 2011

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Conference 2011 photos