Home > Trisomy13/18 > Advice for Pregnancy > When a baby is stillborn or dies shortly after birth



When a baby is stillborn or dies shortly after birth

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Babies with a severe chromosome abnormality may suffer from major medical problems and be stillborn or die shortly after birth......

Discuss Potential Problems

After delivery some babies 
need resuscitation and oxygen before being able to breathe unaided, and this and other potential problems should be discussed beforehand. Parents may decide strenuous resuscitation will not be appropriate,

Intensive care

Where there are major life threatening problems and the future of the baby seems hopeless, it may not be right to provide the highest level of life saving skills, but the decision not to give intensive care to prolong the life of a very sick baby does not mean that loving care is withdrawn. The child can be kept comfortable and peaceful with much of the nursing care being provided by the parent or parents and supported by the medical staff.

When a baby dies

Click on Bereavement 

Questions and Worries

Make a list and ask for a meeting with the Obstetrician, Neonatologist and Paediatrician before the birth to discuss all the questions and worries you have about your delivery and what will happen after the birth. If your baby dies you may be asked for permission for a post-mortem, and it is up to you to agree or refuse.
Most hospitals will be sensitive to the needs of parents who have had a prenatal diagnosis of trisomy 13/18, and will allocate a side room that will give the family privacy after the birth. If you have any concerns discuss them with your GP, and if they are not resolved you may wish to request a change of consultant or hospital.

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