Trisomy Blog Part 3 Living with Cali

Part 3 – The second year and beyond   During Cali's second year I stopped thinking about her death all the time and started to try and come to terms with her life. Silly as it sounds I only now started really understanding that I had a daughter with profound disabilities and that they w...

Read More

SOFT UK Professional Awards

Every year SOFT UK present awards to professionals for providing Outstanding Clinical Care to families affected by Trisomy 13 or 18.  This week Chris Rose, Founding Trustee, travelled to Wales to present this award to midwife Kathryn Hennessey. Kathryn, who works as a midwife at the Royal Gla...

Read More

Trisomy Blog Part 2 Living with Cali

  Part 2 – The First Year   When I look back on the early days with Cali, I think how brave, bemused and innocent we both were; brand new parents with a baby who had a variety of complex medical conditions we knew nothing about, sent home from hospital for “family time”...

Read More

Remembering Diana

In the first of our full length family stories, we'd like to introduce you to Diana. Read her story here.

Read More

Scottish Family Day 2018

For the full write up of our Sottish Family day, held back in September, please click here

Read More

NEW BLOG! Living with Cali by Jay

We are incredibly excited to announce the first part of our new monthly blog by trisomy mom 'Jay'. Jay has captured in words what it has been like for her and her family living through a diagnsis of Trisomy 18 and beyond. Part 1 – Pregnancy, Birth and diagnosis With hindsight it's easy to sa...

Read More

SOFT Newsletter Winter 2017

Welcome to the SOFT UK Winter Newsletter. Due to circumstances beyond our control, we are unable to offer our newsletter in it's usual format. We wanted to be able to give you something, so rather than not have a newsletter at all, we have worked exceptionally hard this week to create a short, onlne...

Read More

RAISE FREE FUNDS FOR SOFT WHILST SHOPPING ONLINE!

HO HO HO! #Christmas is on its way so get shopping, booking or ordering online @GiveasyouLive and start piling up those free funds for us.  SHOP NOW!

Read More

New Volunteer Role!

HELP REQUIRED!Are you a student or budding enthusiast with website design experience/knowledge? Our beautiful new website is live but still needs refining! We would love to hear from anyone who could spend a bit of time helping with the development of our new website. If this is you, or you know som...

Read More

Dr John Carey to attend SOFT UK's 25th anniversary weekend!

We are delighted that Dr John Carey will be among the guests joining us to celebrate 25 years of SOFT UK. It's all taking place on 14th and 15th May 2016 at the Hilton Northampton. See you there!

Read More

Chromosome 18 Europe

Chromosome 18 Europe's 4th biennial European Conference which will be taking place in Rome from August 5th-7th 2016. More info and bookings forms are available from their website.

Read More

Registered Charity: 1002918 (England and Wales) SC043341 (Scotland). Copyright © 2005 – 2017 SOFT UK. All rights reserved.