Jeans for Genes Day 21st September

Jeans for Genes Day is the highly successful annual fundraising event from Genetic Disorders UK.  It turns a simple fundraising idea into an epic income generator for charities like SOFT UK, working with families affected by genetic conditions!  Jeans for Genes Day can be run in any work...

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Run the VirginMoney London Marathon 2019 for SOFT UK

Fancy running the world's most famous race to raise money for SOFT UK? We have been incredibly lucky to win a Charity Ballot place for the VirginMoney London Marathon 2019.   Places for this race are the most sought after in the running calendar, so we are delighted to offer this opportuni...

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SOFT UK Training for Professionals

SOFT UK Trustee John Capper has been working with the Chesterfield Royal Hospital to provide training for professionals working in their Antenatal Services.  In July he gave a presentation to a group of obstetricians, paediatricians, midwives sonographers and other maternity staff.  John p...

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Trisomy Blog Part 4 Living with Cali

Beyond Rocker Bottom Feet and Extra Digits Recently there have been a lot of new people joining the Trisomy 13/18 Facebook group that I am a member of (Trisomy 18&13 Families UK). Many of them have just learnt that they are carrying a child with Edwards or Patau syndrome and are in an anguished...

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Trisomy Blog Part 3 Living with Cali

Part 3 – The second year and beyond During Cali's second year I stopped thinking about her death all the time and started to try and come to terms with her life. Silly as it sounds I only now started really understanding that I had a daughter with profound disabilities and that they would aff...

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SOFT UK Professional Awards

Every year SOFT UK present awards to professionals for providing Outstanding Clinical Care to families affected by Trisomy 13 or 18.  This week Chris Rose, Founding Trustee, travelled to Wales to present this award to midwife Kathryn Hennessey. Kathryn, who works as a midwife at the Royal Gla...

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Trisomy Blog Part 2 Living with Cali

  Part 2 – The First Year   When I look back on the early days with Cali, I think how brave, bemused and innocent we both were; brand new parents with a baby who had a variety of complex medical conditions we knew nothing about, sent home from hospital for “family time”...

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Remembering Diana

In the first of our full length family stories, we'd like to introduce you to Diana. Read her story here.

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Scottish Family Day 2018

For the full write up of our Sottish Family day, held back in September, please click here

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NEW BLOG! Living with Cali by Jay

We are incredibly excited to announce the first part of our new monthly blog by trisomy mom 'Jay'. Jay has captured in words what it has been like for her and her family living through a diagnsis of Trisomy 18 and beyond. Part 1 – Pregnancy, Birth and diagnosis With hindsight it's easy to sa...

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SOFT Newsletter Winter 2017

Welcome to the SOFT UK Winter Newsletter. Due to circumstances beyond our control, we are unable to offer our newsletter in it's usual format. We wanted to be able to give you something, so rather than not have a newsletter at all, we have worked exceptionally hard this week to create a short, onlne...

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RAISE FREE FUNDS FOR SOFT WHILST SHOPPING ONLINE!

HO HO HO! #Christmas is on its way so get shopping, booking or ordering online @GiveasyouLive and start piling up those free funds for us.  SHOP NOW!

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New Volunteer Role!

HELP REQUIRED!Are you a student or budding enthusiast with website design experience/knowledge? Our beautiful new website is live but still needs refining! We would love to hear from anyone who could spend a bit of time helping with the development of our new website. If this is you, or you know som...

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Dr John Carey to attend SOFT UK's 25th anniversary weekend!

We are delighted that Dr John Carey will be among the guests joining us to celebrate 25 years of SOFT UK. It's all taking place on 14th and 15th May 2016 at the Hilton Northampton. See you there!

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Chromosome 18 Europe

Chromosome 18 Europe's 4th biennial European Conference which will be taking place in Rome from August 5th-7th 2016. More info and bookings forms are available from their website.

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