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Our telephones may be answered by a recorded message.  Please leave your name and number and we will always return your call.  If you do not receive a reply to an email within one week please re-send the information in case we did not receive it.

Contact your SOFT representative: 01213 513122
Professional enquiries: 01730 261258
SOFT UK Scotland: Liz Egan 01698 818380
SOFT UK Northern Ireland: Tina Dundas 02866 341656

Write to SOFT UK

SOFT UK
c/o Christine Rose
48 Froggatts Ride
Walmley
Sutton Coldfield
West Midlands B76 2TQ SOFT UK

Professional Enquiries
c/o Rosemary Davies
4 Moggs Mead
Petersfield
Hampshire, GU31 4NT

SOFT UK TRUSTEES
All those who work for SOFT UK do so on a voluntary basis.
Christine Rose
National Coordinator
Jenny Robbins  Website Editor
jenny.soft@live.co.uk
Rachel Attwell 
Prenatal Support
Nick Lingard SOFT Link
Rachel Moon  Telephone Support
Rosemary Davies   Professional Enquiries

SOFT UK ADVISERS
Dr Nora Shannon is a Consultant Clinical Geneticist based at City Hospital, Nottingham with a special interest in Edwards' and Patau's syndromes.
Dr Una MacFadyen is a Consultant Paediatrician and Neonatologist. Her research includes apnoea, and feeding disorders including reflux.
Dr Lucy Kean Consultant Obstetrician, Subspecialist in Fetal Medicine, the midwives of the fetal care unit, Fetal Care Unit, Nottingham University Hospitals, City Campus.
Erica Brown is Vice President of Acorns Children’s Hospices in the West Midlands, and has lectured and published nationally and internationally in the field of special education, spiritual and religious care, palliative care and bereavement.

Please use our enquiry form and we will get back to you as soon as possible
but if your enquiry is urgent please ring the help line on 01213 513122
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USEFUL LINKS

Contact a Family
Antenatal Results and Choices (ARC)
Unique - The Rare Chromosome Disorder Support Group
The Genetic Interest Group
S.O.F.T. (USA) Trisomy 13/18
Chromosone 18 Registry and Research Society

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