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Decisions During Pregnancy

Trisomy in Pregnancy

The majority of families first hear about Trisomy during their pregnancy.  Discussions about potential difficulties in a pregnancy usually come as a huge shock to potential parents.  It is very emotional and therefore can be a difficult time to take on board lots of new information.  Appointments with medical professionals can be short and you may not have been given much information to take away with you. You may have forgotten some of what was said.  You may not have understood all the information completely.  You may have thought of lots of questions after the appointment.  These things are completely normal and will be experienced by most families who find themselves in this situation.  

This section of the website aims to walk you through information relevant to Antenatal Diagnosis, step-by-step, in a way you can understand. 

This starting point will be different for families depending on a number of factors;

  • where you live - (different screening programmes are available in different places)
  • what stage of pregnancy you are at
  • which type of test you have had
  • what results you have received

SOFT UK offers direct support to families from the moment that parents receive a worrying screening result or a diagnosis of trisomy 18 or trisomy 13. We can support you by providing information, listening to your concerns, explaining information and sharing experiences.  All our SUPPORT team are Trisomy parents themselves.  If you would like to talk to one of our family support volunteers in confidence, please get in touch.



Antenatal Tests

Information on the screening and diagnostics tests that you may be offered during pregnancy


Continuing with Pregnancy


Continuing with your Pregnancy

Includes issues you may wish to consider as you prepare to welcome your very special baby




At a time of such confusing emotions, good information may help you reach your decision



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