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SOFT UK Christmas Cards

We have a small number of packs of our popular SOFT UK Christmas Cards left over from last year! Our Christmas cards were designed by SOFT UK Families in 2017.  They come in packs of 10 assorted cards. Suggested donation is £5 plus a postage charge, which will be calculated depending ...

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Making a Regular Donation to SOFT UK!

One of the things families ask us most often is how they can help SOFT UK! Many people want to give something back to SOFT UK after they have received information or support from us, or after we have supported a family member or friend.   However life can be busy!  Its not always possibl...

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APPG Children who need Palliative Care Report

Ministers must meet their commitment to dying children, MPs report says Together for Short Lives Press Release 21st October 2018  England’s most vulnerable children are not able to access the full range of care and support that the government has committed to, a new report by a cross-pa...

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SOFT UK Race Team Announcement

SOFT UK announce successful candidate for VirginMoney London Marathon 2019 SOFT UK were fantastically lucky to secure a Charity Ballot Place for the VirginMoney London Marathon 2019.  We had our highest ever number of applications for the place.  We were incredibly touched by many of the ...

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Scotland Family Day 2018

    On Saturday 29th September, Trustee and Scotland Coordinator Liz Egan welcomed our Scottish members to the Glynnhill Hotel in Renfrew.          Our Family Days are an opportunity for families to create a support network with other families affected by ...

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SOFT UK & Jeans for Genes

SOFT UK Trustee Alison Pearson spoke to Heart Radio, to publicise the work of SOFT UK, as part of the annual Jeans for Genes campaign.  To read her full interview visit: https://www.heart.co.uk/exeter/news/local/devon-mum-wants-more-awareness/

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Genetic Alliance UK Conference

    SOFT UK Chair Jan Fowler and Trustee Alison Pearson took the floor at the Genetic Alliance UK annual conference on 25th September.              The conference brings together professionals from all sectors working with genetic conditions....

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World Birth Defects Day 2019

SOFT UK has signed up as a partner to World Birth Defects Day 2019.  World Birth Defects day has been set up by an array of international agency partners, to encourage improve surveillance of Birth Defects. Their belief is that a lack of reliable statistical data on rare birth defects prevents...

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Summer Newsletter

After the longest wait in history, the SOFT UK Newsletter is finally here! Its absolutely packed full of content this edition, so please give it a read. I would like to say a huge thankyou to all the contributor's this edition, many of whom have waited patiently while I learned the ropes of my new...

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Jeans for Genes Day 20th September 2019

Jeans for Genes Day is the highly successful annual fundraising event from Genetic Disorders UK.  It turns a simple fundraising idea into an epic income generator for charities like SOFT UK, working with families affected by genetic conditions!  Jeans for Genes Day can be run in any work...

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SOFT UK Training for Professionals

SOFT UK Trustee John Capper has been working with the Chesterfield Royal Hospital to provide training for professionals working in their Antenatal Services.  In July he gave a presentation to a group of obstetricians, paediatricians, midwives sonographers and other maternity staff.  John p...

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SOFT UK Professional Awards

Every year SOFT UK present awards to professionals for providing Outstanding Clinical Care to families affected by Trisomy 13 or 18.  This week Chris Rose, Founding Trustee, travelled to Wales to present this award to midwife Kathryn Hennessey. Kathryn, who works as a midwife at the Royal Gla...

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Scottish Family Day 2017

We started the day with tea/coffee and our usual catch up whilst the children settled into the crèche. We are so lucky to have the same crèche and workers every year. They all know our children so well and the children really look forward to spending the day with them all.   ...

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SOFT Newsletter Winter 2017

Welcome to the SOFT UK Winter Newsletter. Due to circumstances beyond our control, we are unable to offer our newsletter in it's usual format. We wanted to be able to give you something, so rather than not have a newsletter at all, we have worked exceptionally hard this week to create a short, onlne...

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RAISE FREE FUNDS FOR SOFT WHILST SHOPPING ONLINE!

HO HO HO! #Christmas is on its way so get shopping, booking or ordering online @GiveasyouLive and start piling up those free funds for us.  SHOP NOW!

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New Volunteer Role!

HELP REQUIRED!Are you a student or budding enthusiast with website design experience/knowledge? Our beautiful new website is live but still needs refining! We would love to hear from anyone who could spend a bit of time helping with the development of our new website. If this is you, or you know som...

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