World Birth Defects Day 2019

SOFT UK has signed up as a partner to World Birth Defects Day 2019.  World Birth Defects day has been set up by an array of international agency partners, to encourage improve surveillance of Birth Defects. Their belief is that a lack of reliable statistical data on rare birth defects prevents...

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Summer Newsletter

After the longest wait in history, the SOFT UK Newsletter is finally here! Its absolutely packed full of content this edition, so please give it a read. I would like to say a huge thankyou to all the contributor's this edition, many of whom have waited patiently while I learned the ropes of my new...

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Scotland Family Day 2018

The Scottish Family Day will take place on Saturday 29th September at the Glynhill Hotel, Renfrewshire.  As always, our Day will be a mixture of information, support and socialising. In the morning we will feature a range of speakers, usually including medical professionals and a SOFT UK Fami...

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Jeans for Genes Day 21st September

Jeans for Genes Day is the highly successful annual fundraising event from Genetic Disorders UK.  It turns a simple fundraising idea into an epic income generator for charities like SOFT UK, working with families affected by genetic conditions!  Jeans for Genes Day can be run in any work...

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Run the VirginMoney London Marathon 2019 for SOFT UK

Fancy running the world's most famous race to raise money for SOFT UK? We have been incredibly lucky to win a Charity Ballot place for the VirginMoney London Marathon 2019.   Places for this race are the most sought after in the running calendar, so we are delighted to offer this opportuni...

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SOFT UK Training for Professionals

SOFT UK Trustee John Capper has been working with the Chesterfield Royal Hospital to provide training for professionals working in their Antenatal Services.  In July he gave a presentation to a group of obstetricians, paediatricians, midwives sonographers and other maternity staff.  John p...

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SOFT UK Professional Awards

Every year SOFT UK present awards to professionals for providing Outstanding Clinical Care to families affected by Trisomy 13 or 18.  This week Chris Rose, Founding Trustee, travelled to Wales to present this award to midwife Kathryn Hennessey. Kathryn, who works as a midwife at the Royal Gla...

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Remembering Diana

In the first of our full length family stories, we'd like to introduce you to Diana. Read her story here.

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Scottish Family Day 2017

We started the day with tea/coffee and our usual catch up whilst the children settled into the crèche. We are so lucky to have the same crèche and workers every year. They all know our children so well and the children really look forward to spending the day with them all.   ...

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SOFT Newsletter Winter 2017

Welcome to the SOFT UK Winter Newsletter. Due to circumstances beyond our control, we are unable to offer our newsletter in it's usual format. We wanted to be able to give you something, so rather than not have a newsletter at all, we have worked exceptionally hard this week to create a short, onlne...

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RAISE FREE FUNDS FOR SOFT WHILST SHOPPING ONLINE!

HO HO HO! #Christmas is on its way so get shopping, booking or ordering online @GiveasyouLive and start piling up those free funds for us.  SHOP NOW!

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New Volunteer Role!

HELP REQUIRED!Are you a student or budding enthusiast with website design experience/knowledge? Our beautiful new website is live but still needs refining! We would love to hear from anyone who could spend a bit of time helping with the development of our new website. If this is you, or you know som...

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Dr John Carey to attend SOFT UK's 25th anniversary weekend!

We are delighted that Dr John Carey will be among the guests joining us to celebrate 25 years of SOFT UK. It's all taking place on 14th and 15th May 2016 at the Hilton Northampton. See you there!

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Chromosome 18 Europe

Chromosome 18 Europe's 4th biennial European Conference which will be taking place in Rome from August 5th-7th 2016. More info and bookings forms are available from their website.

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