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Genetic Alliance UK Conference



 

 

SOFT UK Chair Jan Fowler and Trustee Alison Pearson took the floor at the Genetic Alliance UK annual conference on 25th September. 

 

 

 

 

 

 

The conference brings together professionals from all sectors working with genetic conditions.  Patient charities are well represented, alongside clinicians and other associated professionals.  It is an important platform for small charities like SOFT UK to share their work and participate as part of a wider movement as a force for change.  

 

 

 

 

 

 

 

Jan and Alison gave a presentation on SOFT UK's experience of using the 'Lived Experiences' of families affected by Trisomy in designing and delivering training for professionals.   Their thought-provoking presentation generated social media comment across the sector

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