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SOFT UK Family Meetings

SOFT UK is committed to providing opportunities to link families affected by Edwards’ or Patau’s syndromes. In order to do this better, we are now offering families the chance to meet up more locally, in addition to our popular national Family Days. 

The group of local families may be families with surviving children who want to meet together with their children; a group of bereaved parents who would value the opportunity to meet up; a group who have developed a supportive network via attendance at a SOFT Family Event or other communication. Any group who feel they would benefit from meeting locally, may apply to the Board for support. 

All you really need is a SOFT UK member who is willing to organise the meeting and act as a point of contact for the Board and for families wishing to attend.

For more details please contact Jan Fowler.

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