Introduction
SOFT, the Support Organisation for Trisomy 13, 18 and related disorders was founded in June 1990 by Jenny Robbins and Christine Rose. In 1988 Jenny gave birth to a daughter Beth who had trisomy 13 and lived for three months. In the same year Christine had a son Jonathan who suffers from a partial form of trisomy 18. There was very little information for parents when Beth and Jonathan were born, and SOFT now publishes a range of literature covering the various problems families face when affected by these conditions. Jenny and Christine have since had healthy children and continue to co-ordinate SOFT activities together with a team of voluntary trustees and area co-ordinators around the country.
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