S.O.F.T. U.K. Booklets
S.O.F.T. Facts For Families booklets are a valuable source of information about chromosomal abnormalities and related disorders, and many families affected by trisomy 13/18 have shared their own personal experiences.
Your Unborn Baby
Recent developments in antenatal screening mean that many chromosomal problems are now diagnosed well before birth. Women expect the various tests to provide reassurance that their pregnancy is 'normal', and are not counselled routinely or given advice before a test on what to do if a result shows the developing unborn baby may have serious problems. Your Unborn Baby explores the issues confronting parents after a prenatal diagnosis of trisomy 13 and 18, and includes sections about chromosome abnormalities, what is involved if a termination is chosen, how to plan when the pregnancy continues, and where to get genetic advice.
Your Baby deals with the birth of a child and the early months of life, or death if it occurs. Every family is unique. What may be right for one child or family is not necessarily right for another, and parents can use the shared memories in these booklets as a basis for discussion between themselves and their medical advisers. S.O.F.T. does not recommend particular methods of treatment, and new treatment must never be started or existing treatment changed without consultation with your doctor and other medical professionals. S.O.F.T. does not represent any political or religious groups.