S.O.F.T. U .K.
S.O.F.T. is a registered charity, No 1002918, and is the Support Organisation for Trisomy 13 (Patau's syndrome), Trisomy 18 (Edwards' syndrome), and related disorders such as translocations and mosaicism.
S.O.F.T. has strong links with the medical profession, and the Genetic and Medical Advisers are Ian Young a Professor of Paediatric Clinical Genetics, Dr Una MacFadyen a Consultant Pediatrician and Peter Garwood an Optometrist, BSC.(Hons) F.B.C.O.D.C.L.P.
S.O.F.T. provides help and information for families after a diagnosis of one of these conditions. Families are put in touch with befrienders who are willing to listen and share their experiences. Each year a Family Day is organised when members can meet together and talk to other families and to medical professionals.
S.O.F.T. supports a network of area co-ordinators, and publishes a range of literature dealing with the various problems families face when affected by one of these conditions.
S.O.F.T. 24 hour helpline:
0121 351 3122
S.O.F.T. Fax. No.:
01989 567480
E mail:
enquiries@soft.org.uk