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Healthcare Professionals

The information and resources on these pages are designed for healthcare professionals, to help improve the information, advice and care given to families affected by Trisomy 13 (Patau’s syndrome) or Trisomy 18 (Edwards’ syndrome). We welcome enquiries so if you can’t find what you are looking for or  need further advice please contact SOFT UK.



Follow these links for further info on:

Professionals Information Leaflet

Giving Difficult News

Antenatal Screening Information

Caring for Children with Trisomy

Language Matters


Professional Testimonials


SOFT UK regularly participates in research projects and consultations as a voice for families affected by Trisomy and provides information and training opportunities for Health Professionals working in related fields. 
Take a look at our latest research - TRIS Project The Tracking Rare Incidence Syndromes (TRIS) which seeks to increase the knowledge base on rare incidence trisomy conditions, and to make this information available to families and interested educational, medical and therapeutic professionals. 



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