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SOFT UK families podcasts

 

Here are a series of podcasts produced with SOFT UK families. Each tells a personal story of their own experience of Trisomy 13 or 18. These conversations range in subject matter from bereavement, ending a pregnancy, continuing a pregnancy after diagnosis, a dad’s perspective, and living with Trisomy.

We are so grateful to the individuals who took part in this series of insightful and honest podcasts.

If you would be interested in sharing your own story on our podcast, please email contact@soft.org.uk

 

 

SOFT UK - Shauns Story: The importance of letting it out for dads

 

In this podcast episode we join Shaun, our Engagement Officer, as he recounts his story and shares the importance of talking about what you're going through. Shaun's daughter Emilia has Mosiac Trisomy, and he shares candidly about the the impact of uncertainty during his partner's pregnancy and it's effects on his own mental health.

This episode discusses societal pressures on men, the mental toll of a loss in control and the positive impact of sharing how you feel about what you're going through.

You're not in it alone. If you would like to talk with someone that understands, please feel free to contact our Support Team.

 

SOFT UK NHS Digital Project: An introduction

 

 

SOFT UK is proud and excited to announce a collaborative project with the NHS, an introduction to which can be found in this podcast episode. We are working with Public Health England, NHS Digital and the Down’s Syndrome Association to create 2 films that will help families affected by Trisomy. These films will be widely distributed by the NHS and SOFT UK so are hugely important and will help so many families in their time of greatest need and uncertainty.   

These films will be shaped by families with recent, lived-experience of Trisomy. We are looking for a variety of experiences, ranging from pre-natal diagnosis, ending the pregnancy, to living with the condition.  

Everyone’s experience could truly help to make a difference and support families during their early stages of learning about the condition, the support available, and options open to them.   

The one thing we hear time and time again, is that families wish they had known more at the start of their journey. Both SOFT UK and the NHS are determined to offer that to families in the future, so by sharing your experience, you will be helping us to shape this vision.  

If you would be interested in helping, let us know via email or the short survey below.

Email: contact@soft.org.uk

Survey link: https://forms.gle/oWyzbWDmLxzeaN1Y7

 

SOFT UK Family Stories - Episode 7: Heidi

 

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SOFT UK Family Stories - Episode 6: Laura

 

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SOFT UK Family Stories - Episode 5: Larry

 

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SOFT UK Family Stories - Episode 4: Kate

 

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SOFT UK Family Stories - Episode 3: Simone

 

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SOFT UK Family Stories - Episode 2: Jemima

 

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SOFT UK Family Stories - Episode 1: Juliette

 

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SOFT UK Family Stories - Introduction

 

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