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SOFT UK Advisers

The support of Advisers allows SOFT to collaborate with research, publish literature, and raise awareness of Trisomy 13 and Trisomy 18. Email SOFT UK to get in touch with any of our advisers.

Alison Brett, Bereavement Midwife, Ipswich Hospital, Suffolk

Erica Brown, Vice President of Acorns Children’s Hospices, West Midlands. Research Fellow in Children and Young People's Palliative Care, Coventry University.

Deborah Bruns, Ph.D., Principal Investigator of the Tracking Rare Incidence Syndromes (TRIS) project and Professor, School of Education, Southern Illinois University, USA

Professor John Carey Geneticist and Paediatrician. Medical adviser and founding professional for SOFT USA

Dr Lucy Kean Consultant Obstetrician and Subspecialist in Fetal Medicine, Nottingham University Hospitals.

Dr Una MacFadyen Consultant Paediatrician and Neonatologist, Forth Valley Royal Hospital. 

Professor Joan Morris Professor Medical Statistics, Primary Investigator on the EUROlinkCAT Study, St George’s University, London

Barbara Rosenthal MBACP Counsellor in private practice. Trainer and Supervisor for Cruse Bereavement Care.

Dr Nora Shannon Consultant Clinical Geneticist, Nottingham City Hospital. 


To read more on our Advisors take a look at their blog posts to give you an insight to how they have been involved with SOFT UK. 






Registered Charity: 1002918 (England and Wales) SC043341 (Scotland). Copyright © 2005 – 2017 SOFT UK. All rights reserved.