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Amber, The Trisomy 18 journey of 'my little fox'

Kate Sonley has set up this blog about her baby girl, Amber Marina Lily and their journey of her devastating diagnosis of Trisomy 18, also known as Edwards Syndrome. To read her story, which is regularly updated, click here: https://amberatrisomy18journey.co.uk/ 

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October 1st

Sorry! Been a lot happening the last couple of days and I know a lot of you are wondering how Amber and I are.. first of all she is absolutely fine! We did have a possible ‘blip’ but fortunately it’s turned out to be nothing *This is going to be an extra LONG update!! Monday nigh...

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September 24th

So my little fox Amber is doing amazing!! Tuesday and Wednesday I was getting lots of positive signs, even stuck on the hospital ward around 6am Wednesday morning I saw a wee hedgehog a rabbit and a rainbow (with rainbows I always feel my brother Derek is close ) Nature finds me even here&hell...

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What is Trisomy 18/Edwards Syndrome?

What is Trisomy 18/Edwards Syndrome? Trisomy 18 / Edwards Syndrome Trisomy 18 / Edwards Syndrome is a rare, genetic disorder caused by the presence of 3 copies of all or part of chromosome 18. Every cell in your body contains 23 pairs of chromosomes, 46 in total, half from your mother ...

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