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'Against All Odds' podcast series



Listen to our series of podcasts called “Against all odds”. It features stories from families whose children are not only surviving but thriving. 

The latest podcast is an interview with Chelsea Fenwick who undertook fundraising in memory of her daughter Esme. She managed to raise £10 000 and we hear more about her journey with her beautiful daughter and some of the milestones they shared along the way.

We also hear Leo Andrew’s story, and he is responding well to the therapy he is receiving, despite having a condition so rare it doesn’t have a name. https://anchor.fm/softuk/episodes/Leos-Story-e18un76

In another podcast we chat to Beverly, who is Verity's Mum, a 4 year old girl living in the US with Trisomy 18. Their experience has inspired Mum, Beverly, to set up a charity called 'Verity's Village' which aims to support other families with a prenatal diagnosis of Trisomy 18. https://anchor.fm/softuk/episodes/Against-All-Odds-Veritys-Village-e18un96 

We also chat to Lucy's and hear her story of losing baby Albert in Aug 2016. She tells us how fundraising for SOFT UK became a way of telling her story and giving herself something positive to focus on. The knowledge that the money would help others in her situation in the future kept her going. Listen here: https://anchor.fm/softuk/episodes/Against-All-Odds-Lucys-Fundraising-e19t132

We interview Mum, Serena, who tells Jam Jam’s incredible story. Hear how she turned an upsetting situation into something hopeful and positive by writing the book: “Jam Jam Can!” to change perceptions and educate children about disabilities and being ‘different’. https://anchor.fm/softuk/episodes/Against-All-Odds-Jam-Jam-Can-e19ug09

Ben talks to us about running the London marathon in October 2021 for SOFT UK. He did this in memory of his baby who had Trisomy 18 and passed away during pregnancy in March 2019. He raised £2,825.45 for the cause and this is his story: https://anchor.fm/softuk/episodes/Against-All-Odds-Bens-Fundraising-e1afaru

We chat again with Lucinda, about her fundraising walk for baby Leo. As well as another fundraiser that was set up at very short notice by an amazing organisation. She also updates us on the progress made with finding a treatment for his ultra-rare condition. Listen here: https://anchor.fm/softuk/episodes/Against-All-Odds-Leos-Fundraising-Walk-Around-the-World-e1avdd8

We interview Chelsea Fenwick who undertook fundraising in memory of her daughter Esme. She managed to raise £10 000 and we hear more about her journey with her beautiful daughter and some of the milestones they shared along the way. Listen here: https://anchor.fm/softuk/episodes/Against-All-Odds-Chelseas-Fundraising-e1b346a

Helen is expecting a baby girl with Trisomy 18, and she joins us for a podcast conversation. We chat about the journey through diagnosis, their uncertainty around continuing the pregnancy or not, as well as the added complications of having older children already. We also hear how joining the monthly SOFT support calls helped to normalise some of the feelings she was experiencing. Listen here: https://anchor.fm/softuk/episodes/Against-All-Odds-Helens-Story-e1bu9pe

 

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