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Against All Odds podcast series



Listen to our series of podcasts called “Against all odds”. It features stories from families whose children are not only surviving but thriving. 

Starting with Leo Andrew’s story who is responding well to the therapy he is receiving, despite having a condition so rare it doesn’t have a name. https://anchor.fm/softuk/episodes/Leos-Story-e18un76

In the second podcast we chat to Beverly, who is Verity's Mum, a 4 year old girl living in the US with Trisomy 18. Their experience has inspired Mum, Beverly, to set up a charity called 'Verity's Village' which aims to support other families with a prenatal diagnosis of Trisomy 18. https://anchor.fm/softuk/episodes/Against-All-Odds-Veritys-Village-e18un96 

Our 3rd podcast is Lucy's story of losing baby Albert in Aug 2016. She tells us how fundraising for SOFT UK became a way of telling her story and giving herself something positive to focus on. The knowledge that the money would help others in her situation in the future kept her going. Listen here: https://anchor.fm/softuk/episodes/Against-All-Odds-Lucys-Fundraising-e19t132

The 4th podcast is with Mum, Serena, who tells Jam Jam’s incredible story. Hear how she turned an upsetting situation into something hopeful and positive by writing the book: “Jam Jam Can!” to change perceptions and educate children about disabilities and being ‘different’. https://anchor.fm/softuk/episodes/Against-All-Odds-Jam-Jam-Can-e19ug09

The 5th podcast is with Ben, who ran the London marathon in October 2021 for SOFT UK. He did this in memory of his baby who had Trisomy 18 and passed away during pregnancy in March 2019. He raised £2,825.45 for the cause and this is his story: https://anchor.fm/softuk/episodes/Against-All-Odds-Bens-Fundraising-e1afaru

 

Today’s podcast is a chat with Lucinda, about her fundraising walk for baby Leo. As well as another fundraiser that was set up at very short notice by an amazing organisation. She also updates us on the progress made with finding a treatment for his ultra-rare condition. Listen here: https://anchor.fm/softuk/episodes/Against-All-Odds-Leos-Fundraising-Walk-Around-the-World-e1avdd8 

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