Cali Rocks Rare Disease Day

Regular SOFT UK blogger Jay has shared her popular Living with Cali blog with the world for Rare Disease Day 2019. 

The 28th February is international Rare Disease Day, which focuses on highlighting the experiences of patients with Rare Conditions to the public, the medical community and to policymakers to help improve their treatment and experiences. 

Rare Disease UK are sharing a range of Patient Experience blogs, from families with a wide range of conditions, to highlight the challenges people with Rare Conditions face, with the hashtag #RareReality.

The lovely Cali is flying the flag for Trisomy 18 this year, which we hope will bring the condition more awareness across the Rare Community. 

https://www.raredisease.org.uk/news-event/beyond-rocker-bottom-feet-and-low-down-ears/