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Trisomy 18 Research Project

Researcher and long time friend of SOFT UK Meghan Linscott is undertaking a piece of research into the mental health impacts of parents of children with Trisomy 18. 

Trisomy 18 (also known as Edwards Syndrome) affects approximately 1 in every 1,500 pregnancies. Trisomy 18 causes physical and mental health problems. A child’s diagnosis of Trisomy 18 also has psychological implications for parents. Research exploring these implications is limited, more so than other Trisomy’s and conditions. The majority of existing research in this area focuses on healthcare, professionals and communication. Therefore, I am interested in understanding further psychological concepts such as anxiety, depression and quality of life in the hope that this research will contribute to an increased awareness of Trisomy 18 and help professionals better understand how to support parents who find themselves in these circumstances.

Please see the attached poster and Participant Information Sheet for details!





















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