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Trisomy Researcher joins SOFT UK Professional Adviser Team



SOFT UK are absolutely delighted to welcome Deborah Bruns from the TRIS Project to the team as our newest Professional Adviser.

Our Advisers are a team of specialist professionals who work with SOFT UK on a voluntary basis on a wide range of projects.  They enable us to work alongside professional communities, to access the latest, most accurate information, to make information accessible to our families and give their time to share their experience with our community.  They often attend SOFT UK events to talk about relevant topics or meet directly with families, they produce relevant research and assist us to produce our own information resources such as our website and leaflets. 


Deborah Bruns is Principal Investigator of the Tracking Rare Incidence Syndromes (TRIS) project. Dr. Bruns has had an interest in rare trisomy conditions for over 25 years beginning as a classroom teacher in New York City working with young children with multiple disabilities including preschoolers diagnosed with trisomy 18. The TRIS project began in 2007 and, to date, has over 1000 participating families. She has presented TRIS project data to national and international audiences and published in journals reaching a variety of medical professionals involved with rare syndrome populations.


Dr. Bruns is also a Professor in the Special Education Program in the School of Education at Southern Illinois University. Dr. Bruns has published in professional journals on the topics of preschool inclusion, leadership in early intervention and feeding issues for young children with disabilities. She has presented at regional and national conferences on these topics and co-authored a book on feeding entitled Feeding challenges in your children: Strategies and specialized interventions for success (2012). She is active in state and national level organizations focusing on young children with disabilities and their families.

 

Deborah has a wealth of experience and has already worked alongside SOFT UK, sharing her knowledge and research in the aim of improving the information we provide to families.  We look forward to working with her more in the future! 

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