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You’re Not Alone



You’re Not Alone- A Creative Collaboration for SOFT UK and Same but Different

 

We have the great pleasure to announce that we are working on an exciting collaboration with Same

but Different, a not-for-profit organisation that uses art forms including photography and film, to tell

stories surrounding rare diseases. This project, entitled You’re Not Alone, is funded by Illumina and

the National Lottery Community Fund for Wales.

 

Do you have experience of Trisomy 13 or 18 or related conditions and would like to tell your story?

Or would you like to help other families on their own Trisomy journey? We would love to hear a

diverse range of perspectives including those of mums, dads, grandparents, and siblings. Families

with young children affected by Trisomy, and those with older children. Those that are bereaved;

and those that have ended pregnancies. Along with those that have received a Trisomy diagnosis

during pregnancy.

 

We hope to create a rich tapestry of voices to help those affected by Trisomy. If you would like to

retain your anonymity, that will be respected.

We would like to invite you all to take part in the initial conversations to shape this project, to see

what our SOFT UK families would like to see and hear. Please get in touch if you are interested:

caroline.heap@soft.org.uk

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