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Ethics and Commentaries

Ethical language and decision-making for prenatally diagnosed lethal malformations
Wilkinson D, de Crespigny L, Vicki Xafis (2015)
Semin Fetal Neonatal Med. 20(1): 64


https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4339700/

 

Treatment Decisions for Babies with Trisomy 13 and 18
Pallotto I, Lantos JD (2017)
HEC Forum. 29(3):213-22


https://www.ncbi.nlm.nih.gov/pubmed/28365826

 

 

Evolving medical and surgical management of infants with trisomy 18
Lorenz JM, Hardart GE (2014)
Curr Opin Pediatr. 26(2):169-76


https://www.ncbi.nlm.nih.gov/pubmed/24503533

 

Perspectives on the care and management of infants with trisomy 18 and trisomy 13: striving for balance
Carey JC (2012)
Curr Opin Pediatr. 24(6): 672-8


https://www.ncbi.nlm.nih.gov/pubmed/23044555

 

 
 

Confronting ambiguity: identifying options for infants with trisomy 18
Derrington SF, Dworetz AR (2011)
J Clin Ethics. 22(4): 338-44


https://www.ncbi.nlm.nih.gov/pubmed/22324214

 

Attitudes of Neonatologists Toward Delivery Room Management of Confirmed Trisomy 18: Potential Factors Influencing a Changing Dynamic
McGraw MP, Perlman JM (2008)
Pediatrics. 121(6): 1106-10


https://doi.org/10.1542/peds.2007-1869

 

 
 

More than a diagnosis
Thiele P, Berg SF, Farlow B (2013)
Acta Paediatr. 102(12): 1127-9


https://onlinelibrary.wiley.com/doi/abs/10.1111/apa.12411

 

Medical interventions for children with trisomy 13 and trisomy 18: what is the value of a short disabled life?
Janvier A, Watkins A (2013)
Acta Paediatr. 102(12): 1112-7


https://www.ncbi.nlm.nih.gov/pubmed/24112219

 

 
 

Erring on the Side of Life: Children with Rare Trisomy Conditions, Medical Interventions and Quality of Life
Bruns DA (2013)
J Genet Disor Genet Rep. 2:1


https://www.scitechnol.com/erring-the-side-life-children-with-rare-trisomy-conditions-medical-interventions-quality-life-a8gX.php?article_id=520

 

Does medical intervention affect outcome in infants with trisomy 18 or trisomy 13?
Kosho T, Carey JC (2016)
Am J Med Genet Part A. 170A(4): 847–9


https://www.ncbi.nlm.nih.gov/pubmed/26955783

 

 
 

Trisomy 13 and 18: Cardiac Surgery Makes Sense if It Is Part of a Comprehensive Care Strategy
Jenkins KJ, Roberts AE (2017)
Pediatrics. 140(5): e20172809

https://pediatrics.aappublications.org/content/140/5/e20172809

 

Perspectives on the care and advances in the management of children with trisomy 13 and 18
Carey JC, Kosho T (2016)
Am J Med Genet C Semin Med Genet. 172(3): 249-50


https://www.ncbi.nlm.nih.gov/pubmed/27643592

 

 
 

Upholding Ethical Decision Making in Children With Life Limiting Illnesses.
Glasper EA (2017)
Compr Child Adolesc Nurs. 40(4): 215-8


https://www.ncbi.nlm.nih.gov/pubmed/29161160/?ncbi_mmode=std

 

Inpatient Hospital Care of Children With Trisomy 13 and Trisomy 18 in the United States
Nelson KE, Hexem KR, Feudtner C (2012)
Pediatrics. 129(5): 869-76


https://doi.org/10.1542/peds.2011-2139

 

 

 
Trisomy 18 and complex congenital heart disease: seeking the threshold benefit
Boss RD1, Holmes KW, Althaus J, Rushton CH, McNee H, McNee T (2013)
Pediatrics. 132(1): 161-5


https://pediatrics.aappublications.org/content/132/1/161

 

 


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