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Ethical language and decision-making for prenatally diagnosed lethal malformations
Wilkinson D, de Crespigny L, Vicki Xafis (2015)
Semin Fetal Neonatal Med. 20(1): 64
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4339700/
Treatment Decisions for Babies with Trisomy 13 and 18
Pallotto I, Lantos JD (2017)
HEC Forum. 29(3):213-22
https://www.ncbi.nlm.nih.gov/pubmed/28365826
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Evolving medical and surgical management of infants with trisomy 18
Lorenz JM, Hardart GE (2014)
Curr Opin Pediatr. 26(2):169-76
https://www.ncbi.nlm.nih.gov/pubmed/24503533
Perspectives on the care and management of infants with trisomy 18 and trisomy 13: striving for balance
Carey JC (2012)
Curr Opin Pediatr. 24(6): 672-8
https://www.ncbi.nlm.nih.gov/pubmed/23044555
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Confronting ambiguity: identifying options for infants with trisomy 18
Derrington SF, Dworetz AR (2011)
J Clin Ethics. 22(4): 338-44
https://www.ncbi.nlm.nih.gov/pubmed/22324214
Attitudes of Neonatologists Toward Delivery Room Management of Confirmed Trisomy 18: Potential Factors Influencing a Changing Dynamic
McGraw MP, Perlman JM (2008)
Pediatrics. 121(6): 1106-10
https://doi.org/10.1542/peds.2007-1869
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More than a diagnosis
Thiele P, Berg SF, Farlow B (2013)
Acta Paediatr. 102(12): 1127-9
https://onlinelibrary.wiley.com/doi/abs/10.1111/apa.12411
Medical interventions for children with trisomy 13 and trisomy 18: what is the value of a short disabled life?
Janvier A, Watkins A (2013)
Acta Paediatr. 102(12): 1112-7
https://www.ncbi.nlm.nih.gov/pubmed/24112219
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Erring on the Side of Life: Children with Rare Trisomy Conditions, Medical Interventions and Quality of Life
Bruns DA (2013)
J Genet Disor Genet Rep. 2:1
https://www.scitechnol.com/erring-the-side-life-children-with-rare-trisomy-conditions-medical-interventions-quality-life-a8gX.php?article_id=520
Does medical intervention affect outcome in infants with trisomy 18 or trisomy 13?
Kosho T, Carey JC (2016)
Am J Med Genet Part A. 170A(4): 847–9
https://www.ncbi.nlm.nih.gov/pubmed/26955783
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Trisomy 13 and 18: Cardiac Surgery Makes Sense if It Is Part of a Comprehensive Care Strategy
Jenkins KJ, Roberts AE (2017)
Pediatrics. 140(5): e20172809
https://pediatrics.aappublications.org/content/140/5/e20172809
Perspectives on the care and advances in the management of children with trisomy 13 and 18
Carey JC, Kosho T (2016)
Am J Med Genet C Semin Med Genet. 172(3): 249-50
https://www.ncbi.nlm.nih.gov/pubmed/27643592
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Upholding Ethical Decision Making in Children With Life Limiting Illnesses.
Glasper EA (2017)
Compr Child Adolesc Nurs. 40(4): 215-8
https://www.ncbi.nlm.nih.gov/pubmed/29161160/?ncbi_mmode=std
Inpatient Hospital Care of Children With Trisomy 13 and Trisomy 18 in the United States
Nelson KE, Hexem KR, Feudtner C (2012)
Pediatrics. 129(5): 869-76
https://doi.org/10.1542/peds.2011-2139
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Trisomy 18 and complex congenital heart disease: seeking the threshold benefit
Boss RD1, Holmes KW, Althaus J, Rushton CH, McNee H, McNee T (2013)
Pediatrics. 132(1): 161-5
https://pediatrics.aappublications.org/content/132/1/161
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