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Information and Support
For Families affected by Trisomy 13, 18 and related conditions

Latest News & Events

Join our Team

25/03/2019
SOFT UK is a small charity which supports families affected by the rare genetic conditions Trisomy 1...

National Lottery Community Fund Award

11/03/2019
We are absolutely delighted to announce that we have been awarded £7401 by the National Lotter...

Family Day 2019

04/03/2019
We are delighted to confirm the details for our 2019 Family Day! It will be held on Saturday 11th M...
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About Soft UK

SOFT UK was founded in 1990 by two mothers, Christine Rose and Jenny Robbins. They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.

Remaining true to its founding purpose, SOFT UK is an organisation run by families for other families. We provide up-to-date information and non-judgemental support. 

Our information is evidence-based and prepared in collaboration with our professional advisers. It is always given to complement the advice of the clinicians who work with individual families.

We do not offer medical advice and at all times we respect the relationship between families and their medical professionals.

SOFT UK is a registered charity no. 1002918 (England and Wales) | no. SC043341 (Scotland).



Registered Charity: 1002918 (England and Wales) SC043341 (Scotland). Copyright © 2005 – 2017 SOFT UK. All rights reserved.