Welcome to SOFT UK 

Registered Charity:  1002918 (England and Wales) SC043341 (Scotland) 

Since 1991 we've been here for all UK families affected by Patau's syndrome (trisomy 13), Edwards' syndrome (trisomy 18) and related disorders.

Giving information and support through diagnosis, bereavement, pregnancy decisions and caring.

tel: 0121 351 3122 | email: enquiries@soft.org.uk  

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How can we help you today?

Help for Families 

Have you recently received a diagnosis?     Is a past experience still troubling you?   Are you caring for a child with T13/18?

Information for Professionals

For clinicians involved in the care of pregnant women or of patients affected by trisomy 18 or trisomy 13.

Get Involved

We are so grateful to our many wonderful supporters - here's how you can help SOFT to keep supporting families across the UK.


Dr John Carey to attend SOFT UK's 25th anniversary weekend!


We are delighted that Dr John Carey will be joining us to celebrate 25 years of SOFT UK. The booking form will be going up later in the year but pencil the dates in to your diary now - 14th and 15th May 2016 at the Hilton Northampton. See you there!

See the film of the 2015 NI family day