Welcome to SOFT UK

Registered Charity:  1002918 (England and Wales) SC043341 (Scotland)

Since 1991 we've been here for all UK families affected by Patau's syndrome (trisomy 13), Edwards' syndrome (trisomy 18) and related disorders.

Giving information and support through diagnosis, bereavement, pregnancy decisions and caring.

tel: 0121 351 3122 | email: enquiries@soft.org.uk

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How can we help you today?

Help for Families 

Have you recently received a diagnosis?     Is a past experience still troubling you?   Are you caring for a child with T13/18?

Information for Professionals

For clinicians involved in the care of pregnant women or of patients affected by trisomy 18 or trisomy 13.

Get Involved

We are so grateful to our many wonderful supporters - here's how you can help SOFT to keep supporting families across the UK.


Family Day 17 May

Online bookings have now closed for the SOFT UK Family Day on 17th May. Please email SOFT to check on last minute availability of places. See you all soon!

SOFT Development Day

We would like to invite all our wonderful volunteers to a development session on Saturday 16 May at the Hilton Northampton. Help us shape the future of SOFT so we can better support families. We'll start about 3pm and have dinner around 7.30pm (family members welcome). Email Kirsty for more information and to reserve your hotel room (free of charge for volunteers and their families).

Prenatal Screening

From April 2015 women in England will be offered first trimester screening for Edwards' syndrome and Patau's syndrome (T18/T13). These conditions are already screened for in England in the second trimester. The change follows updated guidance for the NHS Fetal Anomaly Screening Programme; ensuring women continue to receive early, high quality information about their pregnancy. Changes will be reflected in the leaflet that parents receive - Screening Tests for You and Your Baby - and in guidance given to health professionals. For more info visit FASP