Welcome to SOFT UK 

Registered Charity:  1002918 (England and Wales) SC043341 (Scotland) 

Since 1991 we've been here for all UK families affected by trisomy 13 (Patau's syndrome), trisomy 18 (Edwards' syndrome) and related disorders.

Giving information and support through diagnosis, bereavement, pregnancy decisions and caring.

tel: 0121 351 3122 | email: enquiries@soft.org.uk  

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How can we help you today?

Help for Families 

Have you recently received a diagnosis?   Are you caring for a child with trisomy?     Is a past experience troubling you?   

Information for Professionals

For clinicians involved in the care of pregnant women or of patients affected by trisomy 18 or trisomy 13.

Get Involved

Here's how you can help SOFT support families across the UK - including details for sending in your donation.


Dr John Carey to attend SOFT UK's 25th anniversary weekend!


We are delighted that Dr John Carey will be among the guests joining us to celebrate 25 years of SOFT UK. It's all taking place on 14th and 15th May 2016 at the Hilton Northampton. Book your place now. See you there!

25th anniversary booklet

Jenny and Chris are compiling a 20 page Anniversary Booklet that will be printed and given to those attending the Family Weekend. If you would like a photo and a paragraph about your family/ SOFT UK (about 130 words) included in the Booklet please email to: jennydrobbins@gmail.com  subject: SOFT UK. Please can the photo be above 50kb and under 10mb, preferably unedited as we will crop as necessary.