Welcome to SOFT UK

Registered Charity:  1002918 (England and Wales) SC043341 (Scotland)

Since 1991 we've been here for all UK families affected by Patau's syndrome (trisomy 13), Edwards' syndrome (trisomy 18) and related disorders.

Giving information and support through diagnosis, bereavement, pregnancy decisions and caring.

tel: 0121 351 3122 | email: enquiries@soft.org.uk

  • balloon
  • Jan
  • blue-eyed-boy
  • scan
  • jack
  • simon
  • naledi
 
FRSB blue
 
 
 
 
 

How can we help you today?

Help for Families 

Have you recently received a diagnosis?     Is a past experience still troubling you?   Are you caring for a child with T13/18?

Information for Professionals

For clinicians involved in the care of pregnant women or of patients affected by trisomy 18 or trisomy 13.

Get Involved

We are so grateful to our many wonderful supporters - here's how you can help SOFT to keep supporting families across the UK.

 

2015 Dates for your diary

The SOFT UK family day will be taking place on Sun 17 May in Northampton. The Scottish family day will be on Sat 19 Sept in Renfrew. We'll have more details soon.

Family Companion 2014

Download a free copy of Together for Short Lives' A Family Companion. Recently released in its third edition, this is a hugely valuable resource for parents/carers and family members of children who have been diagnosed with a life-limiting or life-threatening condition. 

Bereavement in the Workplace

Cruse is running one-day Bereavement in the Workplace workshops in central London on Thurs 22 Jan and Tues 24 Feb. They are designed for anyone who wants to understand the issues, responsibilities and support surrounding bereavement in the workplace, and how to communicate with employees and colleagues suffering after loss. Recommended for HR personnel, line managers and small- to medium-sized business owners.