Welcome to SOFT UK 

Registered Charity:  1002918 (England and Wales) SC043341 (Scotland) 

Since 1991 we've been here for all UK families affected by trisomy 13 (Patau's syndrome), trisomy 18 (Edwards' syndrome) and related conditions.

Giving information and support through diagnosis, bereavement, pregnancy decisions and caring.

tel: 0121 351 3122 | email: enquiries@soft.org.uk  

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How can we help you today?

Help for Families 

Have you recently received a diagnosis?   Are you caring for a child with trisomy?     Is a past experience troubling you?   

Information for Professionals

For clinicians involved in the care of pregnant women or of patients affected by trisomy 18 or trisomy 13

Get Involved

Here's how you can help SOFT support families across the UK - including details for sending in your donation


Family weekend

We've now closed online bookings for the family weekend in May. We'd still love to squeeze you in, if we can, so email us for details of how to book. 

Dr John Carey to attend SOFT UK's 25th anniversary weekend!

We are delighted that Dr John Carey will be among the guests joining us to celebrate 25 years of SOFT UK. It's all taking place on 14th and 15th May 2016 at the Hilton Northampton. See you there!

Parents' experiences following a T18 diagnosis

Meghan Linscott, Trainee Health Psychologist at the University of Derby, is exploring how parents cope psychologically when their child receives a diagnosis of trisomy 18. Meghan is surveying parents who have, or have had, a child born with full, mosaic or partial Edwards Syndrome (Trisomy 18). Link to the survey.