Welcome to SOFT UK 

Registered Charity:  1002918 (England and Wales) SC043341 (Scotland) 

Since 1991 we've been here for all UK families affected by trisomy 13 (Patau's syndrome), trisomy 18 (Edwards' syndrome) and related conditions.

Giving information and support through diagnosis, bereavement, pregnancy decisions and caring.

tel: 0121 351 3122 | email: enquiries@soft.org.uk  

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How can we help you today?

Help for Families 

Have you recently received a diagnosis?   Are you caring for a child with trisomy?     Is a past experience troubling you?   

Information for Professionals

For clinicians involved in the care of pregnant women or of patients affected by trisomy 18 or trisomy 13

Get Involved

Here's how you can help SOFT support families across the UK - including details for sending in your donation


Would you like to work for SOFT UK?

SOFT UK employs only one paid member of staff, our Charity Administrator. The current post holder is leaving after over 3 years working with us so we are seeking an enthusiastic individual with good organisational and administrative skills and experience to take on the role. 

Let us know what you think of SOFT UK

We're collecting views from SOFT families about the info and support we offer. If you have 5 mins to spare, please complete the online survey (which will be up until 10th June). Go to the survey.