Welcome to SOFT

Registered Charity:  1002918 (England and Wales) SC043341 (Scotland)

Helping those affected by trisomy 13/18, Patau's and Edwards' syndrome and related disorders through a prenatal diagnosis, termination, birth of a baby, caring for a child, and bereavement

  • balloon
  • Jan
  • blue-eyed-boy
  • scan
  • jack
  • simon
  • naledi
logos

Quick links

Information Packs SOFT Support Pregnancy Choices 13/18 Why Us
Coping With Loss Remembrance Letter To Doctors Children Hospices
Research A 13/18 Baby Related Disorders SOFT Children
     
‘In many instances we don't know the answers. We know what happens but nobody knows why it happens.’   Ian Young,
Professor of Paediatric Genetics
     
‘Frequency of occurrence, gaps in medical knowledge, and lifespan of babies combine to invalidate previous statistics.’   John Carey SOFT USA,
Professor of Paediatric Genetics

Your Unborn Baby booklet

Your Unborn Baby
Explores the issues that arise after a prenatal diagnosis of trisomy 13 or trisomy 18

Your Baby booklet

Your Baby
Information about the birth, and caring for a baby with trisomy 13/18