Help For Families
Support and help with families affected by Trisomy 13 and 18

Latest News & Events

Jeans for Genes Day 21st September

17/08/2018
Jeans for Genes Day is the highly successful annual fundraising event from Genetic Disorders UK.&nbs...

Run the VirginMoney London Marathon 2019 for SOFT UK

15/08/2018
Fancy running the world's most famous race to raise money for SOFT UK? We have been incredibly luck...

SOFT UK Training for Professionals

13/08/2018
SOFT UK Trustee John Capper has been working with the Chesterfield Royal Hospital to provide trainin...
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About Soft UK

SOFT UK was founded in 1990 by two mothers, Christine Rose and Jenny Robbins. They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.

Remaining true to its founding purpose, SOFT UK is an organisation run by families for other families. We provide up-to-date information and non-judgemental support. 

Our information is evidence-based and prepared in collaboration with our professional advisers. It is always given to complement the advice of the clinicians who work with individual families.

We do not offer medical advice and at all times we respect the relationship between families and their medical professionals.

SOFT UK is a registered charity no. 1002918 (England and Wales) | no. SC043341 (Scotland).

Registered Charity: 1002918 (England and Wales) SC043341 (Scotland). Copyright © 2005 – 2017 SOFT UK. All rights reserved.