Welcome to SOFT

Registered Charity:  1002918 (England and Wales) SC043341 (Scotland)

Helping those affected by trisomy 13/18, Patau's and Edwards' syndrome and related disorders through a prenatal diagnosis, termination, birth of a baby, caring for a child, and bereavement

tel: 0121 351 3122 | email: enquiries@soft.org.uk

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How can we help you today?

Help for Families 

Have you recently received a diagnosis?     Is a past experience still troubling you?   Are you caring for a child with T13/18?

Information for Professionals

For clinicians involved in the care of pregnant women or of patients affected by trisomy 18 or trisomy 13.

Get Involved

We are so grateful to our many wonderful supporters - here's how you can help SOFT to keep supporting families across the UK.


SOFT goes to Blackpool

This year's conference will be in Blackpool on Sat 3rd May, agenda and online booking form here. Book overnight rooms direct with the hotel (just mention SOFT when booking) - tel 01253 628966, speak to Neha.

Children's Art Competition

For Trisomy Awareness Month (and after) we are running an art comp for kids. Closing date is 31 May.

Screening consultation

Give us your views on first trimester screening for T13/T18. More info here

50's Vintage Ball

Don't miss out on the 50's vintage theme ball taking place on 7th June at Wood Norton Hall Hotel, Evesham - in memory of Ayla Hope Reading.

London Marathon

Huge thanks to Susan, April and Danny who ran for SOFT in this year's event, which took place on 13th April.