Welcome to SOFT

Registered Charity:  1002918 (England and Wales) SC043341 (Scotland)

Since 1991 we have been supporting families affected by Patau's and Edwards' syndromes through a prenatal diagnosis, termination, birth of a baby, caring for a child, and bereavement.

tel: 0121 351 3122 | email: enquiries@soft.org.uk

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How can we help you today?

Help for Families 

Have you recently received a diagnosis?     Is a past experience still troubling you?   Are you caring for a child with T13/18?

Information for Professionals

For clinicians involved in the care of pregnant women or of patients affected by trisomy 18 or trisomy 13.

Get Involved

We are so grateful to our many wonderful supporters - here's how you can help SOFT to keep supporting families across the UK.

 

MSc research - T18 information

Take part in a research project by Kelly Bluett on the information needs of parents who have received a diagnosis of T18. More info and links to the survey.

Bereavement in the Workplace

Cruse is running one-day Bereavement in the Workplace workshops in central London on Thurs 22nd Jan and Tues 24th Feb. They are designed for anyone who wants to understand the issues, responsibilities and support surrounding bereavement in the workplace, and how to communicate with employees and colleagues suffering after loss. Recommended for HR personnel, line managers and small- to medium-sized business owners.

Constipation 101

Trisomy Talk has made a new online presentation (+ written transcript) on constipation - loads of information to help you manage your child's bowels.