Welcome to SOFT UK 

Registered Charity:  1002918 (England and Wales) SC043341 (Scotland) 

Since 1991 we've been here for all UK families affected by trisomy 13 (Patau's syndrome), trisomy 18 (Edwards' syndrome) and related conditions.

Giving information and support through diagnosis, bereavement, pregnancy decisions and caring.

tel: 0121 351 3122 | email: enquiries@soft.org.uk  

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How can we help you today?

Help for Families 

Have you recently received a diagnosis?   Are you caring for a child with trisomy?     Is a past experience troubling you?   

Information for Professionals

For clinicians involved in the care of pregnant women or of patients affected by trisomy 18 or trisomy 13

Get Involved

Here's how you can help SOFT support families across the UK - including details for sending in your donation


Would you like to work for SOFT UK?

SOFT UK employs only one paid member of staff, our Charity Administrator. The current post holder is leaving after over 3 years working with us so we are seeking an enthusiastic individual with good organisational and administrative skills and experience to take on the role. 

Chromosome 18 Europe

Chromosome 18 Europe's 4th biennial European Conference which will be taking place in Rome from August 5th-7th 2016. More info and bookings forms are available from their website.