Help For Families
Support and help with families affected by Trisomy 13 and 18

Latest News & Events

Remembering Diana

03/01/2018
In the first of our full length family stories, we'd like to introduce you to Diana. Read her story ...

Scottish Family Day 2018

29/12/2017
For the full write up of our Sottish Family day, held back in September, please click here

NEW BLOG! Living with Cali by Jay

26/12/2017
We are incredibly excited to announce the first part of our new monthly blog by trisomy mom 'Jay'. J...


About Soft UK

SOFT UK was founded in 1990 by two mothers, Christine Rose and Jenny Robbins. They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.

Remaining true to its founding purpose, SOFT UK is an organisation run by families for other families. We provide up-to-date information and non-judgemental support. 

Our information is evidence-based and prepared in collaboration with our professional advisers. It is always given to complement the advice of the clinicians who work with individual families.

We do not offer medical advice and at all times we respect the relationship between families and their medical professionals.

SOFT UK is a registered charity no. 1002918 (England and Wales) | no. SC043341 (Scotland).

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No part of this website can be reproduced or transmitted in any form without the written permission of the copyright holder SOFT UK. Whilst every attempt has been made to ensure the complete accuracy of the information on this website, neither SOFT UK, the trustees, nor the website hosts can accept liability for any error or misinterpretation resulting from its use.

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Registered Charity: 1002918 (England and Wales) SC043341 (Scotland). Copyright © 2005 – 2017 SOFT UK. All rights reserved.