Welcome to SOFT

Registered Charity:  1002918 (England and Wales) SC043341 (Scotland)

Since 1991 we have been supporting families affected by Patau's and Edwards' syndromes through a prenatal diagnosis, termination, birth of a baby, caring for a child, and bereavement.

tel: 0121 351 3122 | email: enquiries@soft.org.uk

  • balloon
  • Jan
  • blue-eyed-boy
  • scan
  • jack
  • simon
  • naledi
 
 
 
 
 
 
 
 

How can we help you today?

Help for Families 

Have you recently received a diagnosis?     Is a past experience still troubling you?   Are you caring for a child with T13/18?

Information for Professionals

For clinicians involved in the care of pregnant women or of patients affected by trisomy 18 or trisomy 13.

Get Involved

We are so grateful to our many wonderful supporters - here's how you can help SOFT to keep supporting families across the UK.

 

MSc research - T18 information

Take part in a research project by Kelly Bluett on the information needs of parents who have received a diagnosis of T18. More info and links to the survey.

Contact a Family Cymru

2014 marks the 15th anniversary of Contact a Family Cymru. They are celebrating with family parties across Wales. The next one will be  on Sun 16th Nov in Llandudno. Join them for Frozen, lunch and cake galore! To find out about this and future family parties, see the local events listings on their website.

Family Companion 2014

Download a free copy of Together for Short Lives' A Family Companion. Recently released in its third edition, this is a hugely valuable resource for parents/carers and family members of children who have been diagnosed with a life-limiting or life-threatening condition.