Welcome to SOFT UK

Registered Charity:  1002918 (England and Wales) SC043341 (Scotland)

Since 1991 we've been here for all UK families affected by Patau's syndrome (trisomy 13), Edwards' syndrome (trisomy 18) and related disorders.

Giving information and support through diagnosis, bereavement, pregnancy decisions and caring.

tel: 0121 351 3122 | email: enquiries@soft.org.uk

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How can we help you today?

Help for Families 

Have you recently received a diagnosis?     Is a past experience still troubling you?   Are you caring for a child with T13/18?

Information for Professionals

For clinicians involved in the care of pregnant women or of patients affected by trisomy 18 or trisomy 13.

Get Involved

We are so grateful to our many wonderful supporters - here's how you can help SOFT to keep supporting families across the UK.

 

Would you like to become a Trustee?

SOFT UK is currently recruiting for new members of the Board of Trustees. You can help shape the future of SOFT support for families affected by T13/18. Find out more.

Dan jumps for SOFT in memory of Evie

In September 2015, Dan Holmes will be making the leap for SOFT in memory of Evie Scott. Dan is neither a keen flyer nor a seasoned parachutist but he wanted to take on this personal challenge in support of close friends. You can find out more and give to Dan online.

London Marathon 2016

We've just been told that SOFT has won a place on next year's Virgin London Marathon - taking place on Sun 24th April 2016. We'll be drawing one name out of the hat on Monday 27th July. If you're willing to commit to a fundraising target of £2000 (and you're happy to use Virgin Money Giving to set up your online fundraising page), then send an email to Kirsty by midnight on 26th July. Good luck!