Welcome to SOFT

Registered Charity:  1002918 (England and Wales) SC043341 (Scotland)

Helping those affected by trisomy 13/18, Patau's and Edwards' syndrome and related disorders through a prenatal diagnosis, termination, birth of a baby, caring for a child, and bereavement

tel: 0121 351 3122 | email: enquiries@soft.org.uk

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How can we help you today?

Help for Families 

Have you recently received a diagnosis?     Is a past experience still troubling you?   Are you caring for a child with T13/18?

Information for Professionals

For clinicians involved in the care of pregnant women or of patients affected by trisomy 18 or trisomy 13.

Get Involved

We are so grateful to our many wonderful supporters - here's how you can help SOFT to keep supporting families across the UK.

 

Children's Hospice Week 2014

This awareness-raising and fundraising week runs from 13 - 20 June. Did you take part in this week for your local children's hospice? Send us your news and we'll print it in the next SOFT newsletter.

SOFT sibling research project

The SOFT Trustees would like to develop the support that we offer to siblings in families affected by trisomy 13, trisomy 18 and related conditions. As part of that process, they are considering commissioning Erica Brown from Coventry University to undertake a small piece of research on the impact of bereavement on siblings in affected families. This work will cover both siblings born before and born after the death of their sister or brother. We would like to gauge interest among SOFT families about being interviewed for this research - please could you let us know if you would be interested in taking part.

AW14/15 newsletter

The submission date for any family stories, fundraising news, photos etc is 20 August. The newsletter will be out beg of Oct. Email Kirsty if you'd like to include anything.