Welcome to SOFT UK 

Registered Charity:  1002918 (England and Wales) SC043341 (Scotland) 

Since 1991 we've been here for all UK families affected by Patau's syndrome (trisomy 13), Edwards' syndrome (trisomy 18) and related disorders.

Giving information and support through diagnosis, bereavement, pregnancy decisions and caring.

tel: 0121 351 3122 | email: enquiries@soft.org.uk  

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How can we help you today?

Help for Families 

Have you recently received a diagnosis?     Is a past experience still troubling you?   Are you caring for a child with T13/18?

Information for Professionals

For clinicians involved in the care of pregnant women or of patients affected by trisomy 18 or trisomy 13.

Get Involved

We are so grateful to our many wonderful supporters - here's how you can help SOFT to keep supporting families across the UK.


Dr John Carey to attend SOFT UK's 25th anniversary weekend!


We are delighted that Dr John Carey will be among the guests joining us to celebrate 25 years of SOFT UK. It's all taking place on 14th and 15th May 2016 at the Hilton Northampton. Book your place now. See you there!


If you have a child who is 4yrs or over with intellectual disability due to a genetic cause and you are living in the UK, you are welcome to join the IMAGINE ID study. For more info and to register your interest.